State of the States in Family Caregiver Support: A 50-State Study
 

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This report is the first in the country to examine publicly funded caregiver support programs in all 50 states and the District of Columbia. It explores programs provided through the Older Americans Act’s National Family Caregiver Support Program, Aged/Disabled Medicaid waiver programs, and state-funded programs.  It highlights key findings, offers state-by-state profiles, pinpoints challenges, identifies issues for the future, and expands recognition of family caregiver needs as distinct from the needs of care receivers.

To see more information about caregiving support in the US, please visit FCA's Online Resource, "Caregiving Across the States."

Family Caregiver Alliance, in collaboration with the National Conference of State Legislatures, has released The State of the States in Family Caregiver Support: A 50-State Study. The study--a two-year project--is the first to examine publicly funded caregiver support programs in all 50 states and the District of Columbia since the passage of the landmark National Family Caregiver Support Program (NFCSP) in 2000. 

This publication is available as a downloadable PDF document. To view and print this file you will need Adobe Acrobat Reader. It is available as a  free download by clicking here

Download the full report (4 MB)   

Executive Summary  

Introduction  

 Methods  

 

 Key Findings 

 Program Administration  

 Funding  

 Eligibility and Assessment  

 Services  

 Consumer Direction  

 System Development  

 Other Issues 

 

 Conclusions and Issues for the Future  

 References  

State Profiles   

50-State Data Tables   

Data Documentation    

 

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Caregiving Fact: A full two-thirds of working caregivers providing assistance to a family member or friend aged 65+ decreased their work hours or took unpaid leave in order to meet their caregiving duties. See FCA's Policy Brief, Caregiving and Retirement Planning, for more information.
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