State of the States in Family Caregiver Support: A 50-State Study
 

  E-mail to a Friend

 

This report is the first in the country to examine publicly funded caregiver support programs in all 50 states and the District of Columbia. It explores programs provided through the Older Americans Act’s National Family Caregiver Support Program, Aged/Disabled Medicaid waiver programs, and state-funded programs.  It highlights key findings, offers state-by-state profiles, pinpoints challenges, identifies issues for the future, and expands recognition of family caregiver needs as distinct from the needs of care receivers.

To see more information about caregiving support in the US, please visit FCA's Online Resource, "Caregiving Across the States."

Family Caregiver Alliance, in collaboration with the National Conference of State Legislatures, has released The State of the States in Family Caregiver Support: A 50-State Study. The study--a two-year project--is the first to examine publicly funded caregiver support programs in all 50 states and the District of Columbia since the passage of the landmark National Family Caregiver Support Program (NFCSP) in 2000. 

This publication is available as a downloadable PDF document. To view and print this file you will need Adobe Acrobat Reader. It is available as a  free download by clicking here

Download the full report (4 MB)   

Executive Summary  

Introduction  

 Methods  

 

 Key Findings 

 Program Administration  

 Funding  

 Eligibility and Assessment  

 Services  

 Consumer Direction  

 System Development  

 Other Issues 

 

 Conclusions and Issues for the Future  

 References  

State Profiles   

50-State Data Tables   

Data Documentation    

 

Order This Publication0!

Order This Publication

  E-mail to a Friend

 
back to top  
 
Caregiving Fact: Female caregivers may spend as much as 50% more time providing care than male caregivers. Learn more.
  Fact Sheets & Publications
FACT & TIP SHEETS
Caregiving Issues and Strategies
Health Conditions
Legal Issues
Statistics and Demographics
Fact Sheets in Chinese
Fact Sheets in Korean
Fact Sheets in Spanish
Facts Sheets in Vietnamese
TIP SHEETS
TELECONFERENCE ARCHIVE
TeleCaregiving Workshop Audio Archive
Archivo del taller del teléfono en español
National Center on Caregiving Teleconference Seminars
OTHER FCA PUBLICATIONS
Research and Policy Studies
    Selected Caregiver Assessment Measures: A Resource Inventory for Practitioners (2012)
    Proceedings from the National Conference: Family Caregiving: State of the Art, Future Trends (2007)
    National Consensus Report on Caregiver Assessment: Volume I, Principles, Guidelines and Strategies for Change (2006)
    National Consensus Report on Caregiver Assessment: Volume II, Voices and Views from the Field (2006)
    State of the States in Family Caregiver Support: A 50-State Study
    Survey of Californians About In-Home Care Services (March 2003)
    Family Caregiver Support: Policies, Perceptions and Practices in 10 States Since Passage of the National Family Caregiver Support Program (November 2002)
    Family Caregiving as a Grantmaking Area: Current Focus and Future Trends (July 2002)
    Parkinson's Disease Caregiving: A Descriptive Report (2002)
    Who Will Provide Care? Emerging Issues for State Policymakers (2001)
    Making Hard Choices: Respecting Both Voices (May 2000)
    Family Caregivers: Partners in Long Term Care (2000)
    Survey of 15 States' Caregiver Support Programs: Final Report (October 1999)
    Report on Family Caregiver Support in California's Publicly Funded Programs (April 1999)
    Options for Supporting Informal and Family Caregiving: A Policy Paper (August 1997)
    Family Caregivers and Consumer Choice: Options for In-Home Respite Care (December 1996)
    A Study of Pre- and Post-Placement Family Caregiving for Individuals with Alzheimer's Disease and Related Disorders (August 1995)
Monographs
Policy Briefs
Consumer Guide
Newsletters
Toolkits and Training Manuals for Practitioners
Annual Reports
Other Publications Authored by FCA Staff
State-by-State Caregiver Statistics
Make a Donation to FCA
 
 
bigger type