The 36-Hour Day: A Family Guide to Caring for People with Alzheimer Disease, Other Dementias, and Memory Loss in Later Life, Fourth Edition, Nancy L. Mace and Peter V. Rabins (2006) The Johns Hopkins University Press, Baltimore, www.press.jhu.edu. This practical and comprehensive guide covers in detail Alzheimer’s and dementia care for the family, and is packed with advice. First published more than 25 years ago, this newest edition of the classic includes family resources and updated medical, legal, financial, and residential care information. Also available in large print.
Loss, Trauma, and Resilience: Therapeutic Work with Ambiguous Loss, Pauline Boss (2006) W.W. Norton and Company, Inc., New York, www.wwnorton.com. Written by a practicing marriage and family therapist, this comprehensive book is designed primarily to provide clinicians with a framework for therapy with clients suffering from “ambiguous loss,” which the author describes as occurring when someone is either physically missing or psychologically missing, when someone is “there, but not there.” Those who are physically missing but psychologically present in the minds of their families include a soldier missing in action, a kidnapped child, or a death with no body to bury, as was the case with many 9/11 victims. In these situations, the family is prevented from finding closure. Psychological absence but physical presence is best exemplified by an individual with Alzheimer’s disease or a traumatic brain injury, when families are faced with the psychological loss of who the person used to be. The author says that closure and resolution are not possible for those dealing with an ambiguous loss, but developing resilience and finding hope and meaning can help people live with the ambiguity. The author’s intervention recommendations stress the importance of involving the community and family.
Mom’s OK, She Just Forgets: The Alzheimer’s Journey from Denial to Acceptance, Evelyn McLay and Ellen P. Young (2007) Prometheus Books, N.Y., www.prometheusbooks.com. Although denial can be an effective coping mechanism in the short term, ongoing denial that is not worked through becomes our enemy, the authors state, when we are dealing with Alzheimer’s. Both have been Alzheimer’s caregivers and feel there is an unmet need to focus on denial as an issue in Alzheimer’s caregiving. Here, along with practical advice, they describe the many ways that denial plays a part in how we handle ourselves and our loved ones when faced with the illness, and how we make, or don’t make, difficult decisions. The book suggests tools and techniques for moving beyond denial and provides guidance in approaching challenging behaviors and issues around driving, adult day care and long-term care, among others.
Multicultural Social Work Practice, Derald Wing Sue (2006) John Wiley & Sons, Inc., Hoboken, NJ, www.wiley.com. This comprehensive yet practical text offers students and practitioners who work with families state-of-the-art guidance on culturally sensitive social work practice. The book explores and synthesizes theoretical, political, and philosophical concepts related to cultural competence in the field of social work. The author features sections on the conceptual, political and clinical dimensions of social work practice, as well as sections on worldviews and how to work with culturally diverse populations. Real-life examples illustrate important concepts and serve as a useful tool for students and professionals in the field.
The Personal Care Attendant Guide: The Art of Finding, Keeping, or Being One, Katie Rodriguez Banister (2007) Demos Medical Publishing, New York, www.demosmedpub.com. Informed by the author’s experience as a quadriplegic, this is a frank discussion of the many challenges and rewards that come with the patient/aide relationship. It offers stories and anecdotes from patients and attendants, and good advice. The author has learned that the right attendant is hard to find, and offers guidance to the potential employer on preparing to take on an aide, how to go about finding, hiring and training an attendant, and back-up plans. Advice for prospective attendants touches on training but focuses on characteristics of a good attendant. There are chapters specific to spousal caregiving, caring for children with disabilities, and caring for the elderly. Additional features include a duty spreadsheet and interview, hiring and background check forms, and disability internet resource listings.
Perspectives: A Newsletter for Individuals with Alzheimer’s or a Related Disorder, Lisa Snyder, LCSW, Editor. UCSD Shiley-Marcos Alzheimer’s Research Center, CA., (858) 622-5800, firstname.lastname@example.org. A $20.00 donation is requested for print subscriptions; e-mail subscriptions are free. A quarterly newsletter offering essays, articles, interviews, and poetry, as well as updates on research, resources, and new publications and other items of interest to people with dementing illnesses. Individuals with Alzheimer’s and other memory disorders bring their perspectives to the newsletter through contributions of letters, poetry and articles. Past issues of the newsletter are archived on the UCSD ADRC website at http://adrc.ucsd.edu.
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