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| Home > Newsletters > Caregiving PolicyDigest > Volume IX, Number 7, April 1, 2009
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| A newsletter of FCA's National Center on Caregiving |
April 1, 2009 Volume IX, Number 7
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IN THIS ISSUE
State Legislation, Policy & Reports
- Maine: Bill Prohibits Employment Discrimination against Family Caregivers. More...
- Minnesota: Bill Would Establish Lifespan Respite Care Program. More...
- Report Compares New York's Long-Term Care Policies to 18 Other States'. More...
- Bill Would Establish Paid Family Leave Program. More...
Federal Legislation, Policy & Reports
- Alzheimer's Family Assistance Act Reintroduced in Congress. More...
- Family Leave Insurance Act Reintroduced in Congress. More...
- National Alzheimer's Strategic Plan Released at Senate Hearing. More...
- Senate Subcommittee on Health Care Holds Hearing on Long-Term Care. More...
International News
- Australia: Federal Government Funds Transitional Care Facilities. More...
- United Kingdom: New Commission Will Examine Needs of Sandwich Generation Caregivers. More...
Research Reports & Journal Articles
- Report Shows Investing in Medicaid HCBS Can Be Cost-Effective. More...
- Survey Reveals Challenges Faced by Those with Chronic Conditions. More...
- New Report Highlights Alzheimer's Prevalence, Reliance on Family Caregivers. More...
Conferences & Trainings
- Alzheimer's Disease Research Center Conference May 21-22, 2009. More...
- 2009 n4a Annual Conference & Tradeshow July 19-22. More...
Funding, Media & Miscellaneous
- PR Story Focuses on "National Alzheimer's Strategic Plan". More...
- "The Missing Link in Chronic Care Coordination". More...
- "Caring for Aging Parents Tough, Rewarding". More...
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Maine: Bill Prohibits Employment Discrimination against Family Caregivers
On March 10, 2009, a Maine legislator introduced a bill (H.P. 664) to amend the Maine Human Rights Act to prohibit employment discrimination against someone based on their family caregiver status. The bill defines "family caregiver" as a person who cares for his or her child, parent, spouse, domestic partner or sibling. This bill follows a trend in other states and jurisdictions to prohibit discrimination based on familial status and care responsibilities. For more information, visit:
Maine Legislature
Minnesota: Bill Would Establish Lifespan Respite Care ProgramA Minnesota lawmaker introduced a bill (S.F. 1842) on March 23, 2009 to provide funding for nonprofit organizations to establish lifespan respite care programs for caregivers who live with their care recipient. Eligible organizations must be capable of operating on a statewide basis and have expertise in respite care issues. In addition to providing direct services, the state funding will be used to oversee and monitor lifespan respite care projects, develop best practice guidelines and training curriculum for respite care programs, and facilitate information sharing and coordination among respite providers throughout the state. For more information, visit: Minnesota Legislature
Report Compares New York's Long-Term Care Policies to 18 Other States'
In February 2009, the New York Health Policy Research Center released a report that compared New York to 18 other states on issues related to long-term care, including demographics on the older adult population, spending on long-term care, long-term care policies and services, and the quality of nursing home care. On the issue of family caregiving, the report reveals that New York does not require caregiver assessment as part of its community-based long-term care programs as do some other states, including Minnesota, Pennsylvania and Washington. The report, Medicaid and Long-Term Care: New York Compared to 18 Other States, was prepared for the New York State Department of Health. To read the report, visit:
Nelson A. Rockefeller Institute of Government
Oregon: Bill Would Establish Paid Family Leave Program
On March 18, 2009, an Oregon Senator introduced a bill (S.B. 966) that would create a Family Leave Benefits Insurance Program to provide partial pay to employees taking leave to care for a new child, a child with special needs or a family member with a serious health condition. Workers in companies with at least 25 employees would pay two cents per hour into a self-sustaining fund. After six months, they would be eligible for up to six weeks of paid leave at $300 per week. Small businesses could opt in. For more information, visit:
Oregon Legislature
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Alzheimer's Family Assistance Act Reintroduced in Congress
On February 25, 2009, Representative Eddie Bernice Johnson (D-TX) reintroduced the Alzheimer's Family Assistance Act (H.R. 1192), which would provide an income tax credit for family members providing care to a relative with long-term care needs. The tax credit would start at $2,000 in 2009 and increase each year until it reaches $3,500 in 2012. The bill also allows a tax deduction for long-term care (LTC) insurance premiums and improves consumer protections for LTC insurance policy-holders. For more information, visit:
Thomas
Family Leave Insurance Act Reintroduced in Congress
On March 25, 2009, Representative Pete Stark (D-CA) reintroduced the Family Leave Insurance Act (H.R. 1723), which would provide up to 12 weeks of paid leave for workers who need time off to care for a seriously ill family member, including a spouse, child, parent, domestic partner, grandparent, grandchild and sibling, to care for a new child, or to recover from their own serious illness. The bill would create a Family Leave Insurance Fund, funded by premiums paid by both employers and workers equal to 0.2% of each worker's earnings. All employees who have paid into the system for at least six months, including part-time employees, would receive between 45% and 100% of their weekly income, based on a progressively tiered system. The bill would also provide job protection for those workers who qualify for Family and Medical Leave Act (FMLA) benefits. For more information, visit:
Thomas
National Alzheimer's Strategic Plan Released at Senate Hearing
On March 25, 2009, "The National Alzheimer's Strategic Plan," the final report from the Alzheimer's Study Group, was released at a hearing of the Senate Special Committee on Aging. Established by Congress in 2007, the Alzheimer's Study Group was tasked with creating a plan to address the growing crisis of Alzheimer's disease in the U.S. The co-chairs of the Study Group, former House Speaker Newt Gingrich and former Senator Bob Kerrey, as well as Sandra Day O'Connor, a Study Group member and former Supreme Court Justice, California First Lady Maria Shriver, and Larry Butcher of Alzheimer's Community Care in Florida, testified at the Senate hearing. The Strategic Plan recommends supporting developmental science and basic research to develop a way to delay and prevent Alzheimer's disease, providing coverage of coordinated care for people with Alzheimer's disease, and establishing an Alzheimer's Solutions Project Office within the federal government. For more information, visit:
Alzheimer's Study Group Senate Special Committee on Aging
Senate Subcommittee on Health Care Holds Hearing on Long-Term Care
On March 25, 2009, the Senate Subcommittee on Health Care of the Senate Finance Committee held a hearing on "The Role of Long-Term Care in Health Reform." Led by Subcommittee Chairman Jay Rockefeller (D-WV) and Ranking Member Orrin Hatch (R-UT), the hearing featured testimony from Judy Feder, Ph.D., Center for American Progress Action Fund; Raymond C. Scheppach, Ph.D., National Governors Association; Dennis G. Smith, The Heritage Foundation; and Joshua M. Wiener, Ph.D., RTI International. Augmenting the Senate Special Committee on Aging's hearing on "Health Care Reform in an Aging America" on March 4, witnesses argued that long-term care improvement must be part of any broad-based health reform plan. For more information and to read the testimony, visit:
Senate Finance Committee
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Australia: Federal Government Funds Transitional Care Facilities
Australian Minister for Ageing Justine Elliot recently announced that 470 transition care places will be created to help older people regain their independence after a hospital stay, as part of the federal government's $203 million (USD) Transition Care Plan. In the 2007-2008 financial year, of the 10,146 people who received assistance through transition care, 78% improved or maintained their functioning. The goal is to have 4,000 transition care places fully operational by 2012, serving up to 30,000 older Australians each year. For more information, visit:
Australian Minister for Ageing
United Kingdom: New Commission Will Examine Needs of Sandwich Generation Caregivers
An article in the United Kingdom's Guardian examines the growing number of sandwich generation caregivers and their increased need for support as they raise their children and care for their aging relatives. The issue has even caught the attention of a national children's charity, 4Children, which has set up a commission to focus not only on the relationships between parents and young children, but also between adults and their elderly parents. The commission will examine all sides of the issue, report interim findings and make recommendations on how to address the needs of the sandwich generation and what types of services and support to provide caregiving families. For more information, visit:
Guardian
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Report Shows Investing in Medicaid HCBS Can Be Cost-Effective
A new report from the AARP Public Policy Institute reveals recent evidence indicating that expanding home and community-based services (HCBS) can be cost-effective in the long run when combined with efforts that reduce reliance on nursing home care. In addition, shifting spending away from institutional services and toward HCBS can allow states to serve more beneficiaries with available dollars. This report is especially relevant as states work hard to find ways to save money without cutting services and benefits. To read "Taking the Long View: Investing in Medicaid Home and Community-Based Services is Cost Effective," visit:
AARP Public Policy Institute
Survey Reveals Challenges Faced by Those with Chronic Conditions
A new survey commissioned by the National Council on Aging (NCOA) reveals that many chronic disease sufferers delay health care due to cost, living in pain and feeling abandoned by their health care providers. Re-Forming Health Care: Americans Speak Out about Chronic Conditions and the Pursuit of Healthier Lives was a survey of over 1,000 Americans 44 years and older with a chronic illness. More than half of respondents said their health care providers have not asked whether they have help at home to manage their health problems, yet half of those surveyed do rely on spouses, partners, friends and relatives for support. Chronic disease sufferers reported that they are interested in receiving services and support from a variety of sources, including 70% who would like help from family and friends. For more information, visit:
National Council on Aging
New Report Highlights Alzheimer's Prevalence, Reliance on Family Caregivers
The Alzheimer's Association recently released Alzheimer's Disease Facts and Figures for 2009. This report provides U.S. data on Alzheimer's disease and other dementias, including prevalence, mortality, lifetime risk, caregiving information, and use and costs of care and services. The report reveals that, in 2008, there were 9.9. million informal caregivers providing 805 billion hours of care, valued at $94 billion, to people with Alzheimer's disease and other dementias. To download the 75-page report, visit:
Alzheimer's Association
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Alzheimer's Disease Research Center Conference May 21-22
The UC San Diego School of Medicine's Shiley-Marcos Alzheimer's Disease Research Center will host a two-day conference called "Alzheimer's Disease: Update on Research, Treatment, and Cure" on May 21-22, 2009 in San Diego. With two tracks, Practical Management and Medical Management, this forum focuses on providing an understanding of the newest clinical research on Alzheimer's disease and other dementias and the implications for practice. Continuing education credits are available. For more information, visit:
Shiley-Marcos Alzheimer's Disease Research Center
2009 n4a Annual Conference & Tradeshow July 19-22
The National Association of Area Agencies on Aging (n4a) will host its annual Conference and Tradeshow July 19-22, 2009 in Minneapolis. "Highlighting Innovations in Aging" is the theme, and sessions will showcase and facilitate the replication of the most innovative policies, programs and services that assist older adults to lead independent and productive lives. For more information or to register, visit:
n4a
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NPR Story Focuses on "National Alzheimer's Strategic Plan"
A story on NPR's Talk of the Nation on March 25, 2009 focused on the Alzheimer's Study Group's recently released "National Alzheimer's Strategic Plan." Study Group members Newt Gingrich, former Speaker of the House, Sandra Day O'Connor, former Supreme Court Justice, and David Satcher, former Surgeon General, were guests on the show. They discussed the report and efforts to combat Alzheimer's disease. They also spoke about the importance of family members in caring for adults with the disease, the billons of dollars in uncompensated care they provide, and the need to support caregiving families through care coordination services. For more information, visit:
NPR
"The Missing Link in Chronic Care Coordination"
As experts in transition care, Eric Coleman, M.D., Carol Levine and Mary Naylor published a response on March 27, 2009 in The Bioethics Forum to a recent study in Journal of the American Medical Association which reported that care coordination programs for chronically ill Medicare patients neither improved quality of care nor reduced Medicare costs. Coleman, Levine and Naylor argued that care coordination programs do work if they "involve the patient's family caregivers--relatives, friends, and neighbors--who provide or manage their increasingly complex care. These caregivers are the missing or typically overlooked links in chronic care, and yet they provide essential day-to-day monitoring and support." For more information, visit:
The Bioethics Forum
"Caring for Aging Parents Tough, Rewarding"
An article in the Atlanta Journal-Constitution on March 22, 2009 highlights the challenges of caring for aging parents and focuses on the need for caregivers to find support. The article provides coping strategies for caregivers, such as planning ahead before problems become a crisis and tough decisions must be made, asking for specific types of help from family and friends, taking care of yourself, and spending time with your spouse away from caregiving duties. For more information, visit:
Atlanta Journal-Constitution
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To find caregiver support services in your state, visit FCA's Family Care Navigator http://caregiver.org/caregiver/jsp/fcn_content_node.jsp?nodeid=2083
?2009 Family Caregiver Alliance. All rights reserved.
The National Center on Caregiving at Family Caregiver Alliance works to advance the development of high-quality and cost-effective policies and programs for caregivers in every state in the country. The National Center is a central source of information and technical assistance on family caregiving for policymakers, health and service providers, program developers, funders, media and families. For questions or further information about the National Center on Caregiving, contact PolicyDigest@caregiver.org or visit the Family Caregiver Alliance website at www.caregiver.org.
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Caregiving PolicyDigest is a publication of the National Center on Caregiving at Family Caregiver Alliance, 180 Montgomery Street, Suite 1100, San Francisco, CA 94104.
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