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| Home > Newsletters > Caregiving PolicyDigest > Volume X, Number 6, March 24, 2010
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| A newsletter of FCA's National Center on Caregiving |
March 24, 2010 Volume X, Number 6
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IN THIS ISSUE
State Legislation, Policy & Reports
- Missouri: CMS Sanctions State for Restricting Home Health Eligibility More...
- Brief Examines State Medicaid Long-Term Care Policies More...
Federal Legislation, Policy & Reports
- Health Reform Legislation Signed Into Law More...
International News
- United Kingdom: Debate Over Free Home Care for All More...
Research Reports & Journal Articles
- 2010 Update: Chronic Care: Making the Case for Ongoing Care More...
- 2010 Alzheimer's Disease Facts and Figures More...
Conferences & Trainings
- Powerful Tools for Caregivers Class Leader Training April 22-23 More...
- National Respite Conference Call for Papers More...
- Alzheimer's Disease Conference on Research, Treatment, and Care May 27-28 More...
Funding, Media & Miscellaneous
- Article Highlights Silent Struggle of Being a Caregiver More...
- Brookdale Foundation Group Request for Proposals More...
Research Registry
- Dementia Caregiver Support Research Study More...
- Family Caregivers of Veterans Survey More...
- New to Caregiving PolicyDigest More...
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Missouri: CMS Sanctions
State for Restricting
Home Health Eligibility
The Centers for
Medicare and Medicaid Services (CMS) is sanctioning Missouri's Department of
Social Services for requiring that consumers be "confined to the
home" to qualify for Medicaid-covered home health services. CMS argues that such a requirement violates
the Supreme Court's Olmstead
decision, which allows people with disabilities to receive services in
community settings rather than institutional settings when appropriate, and
that people should not lose their home health services just because they leave
their home for short periods of time. For
more information, visit:
PHI
Brief Examines State Medicaid Long-Term Care PoliciesThe Direct
Care Alliance recently released "The Best and Worst State Practices in
Medicaid Long-Term Care" by Dr. Candace Howes of Connecticut College. This April 2010 Policy Brief explains why
Medicaid poli?cies lead to so much variation in current state Medicaid
long-term care programs, and how those policies have been
used in some states to expand the range and availability of services. It also
draws lessons from innovative states to suggest reforms in national Medicaid
policies that would make home- and community-based services accessible to more
program participants. The brief provides
information about each state's coverage of long-term care services and the amount
of spending per recipient on home and community-based services versus nursing
homes. For
more information, visit:
Direct Care Alliance
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Health Reform Legislation Signed Into Law
On March 23, 2010, President Obama signed into law historic
health reform legislation, which had passed the House of Representatives two
days earlier and the Senate in December.
While the bill, the Patient Protection and
Affordable Care Act (H.R. 3590), has numerous provisions to benefit all
Americans, there are some that are especially beneficial to family
caregivers. The new law will provide
incentives to states to increase access to home and community-based services in
their Medicaid programs, provide training for family caregivers and home care
workers, and expand access to care coordination and transitional care services. In addition, the new law includes the
Community Living Assistance Services and Supports (CLASS) Act, which will
establish a national, voluntary insurance program for purchasing long-term
services and supports. The Senate is now
considering a package of legislative fixes to H.R. 3590, which also passed in
the House on March 21. For more
information, visit:
Kaiser Health News
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United Kingdom: Debate Over Free Home Care for All
The United Kingdom
is currently debating a proposed policy of providing all older adults with
severe care needs, regardless of income, access to free home care
services. A departure from the country's
traditionally means-tested system, this proposal by Prime Minister Gordon Brown
is controversial because of its high and somewhat unpredictable expense. After soliciting public comment on the
proposal, the U.K. Department of Health released the response to its findings
on March 12, 2010. For more information,
visit:
New York Times U.K. Department of Health
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2010 Update: Chronic Care: Making the Case for Ongoing
Care
The Robert Wood
Johnson Foundation recently published Chronic Care: Making the Case for
Ongoing Care, a 2010 update of its 2002 chartbook. It examines the impact of chronic conditions
on individuals and their caregivers, as well as the inadequacies of the U.S. health
care system to meet their needs.
Authored by Gerard Anderson, Ph.D., the chartbook provides data on the
prevalence of chronic conditions - highlighting the rapid increase in the
number of people with such conditions - and explains the impact on the health
care finance and delivery system. For
more information, visit:
Robert Wood Johnson Foundation
2010 Alzheimer's Disease Facts and Figures
The
Alzheimer's Association recently released
2010 Alzheimer's Disease Facts and Figures. This report provides U.S. data on
Alzheimer's disease and other dementias, including prevalence, mortality,
lifetime risk, caregiving information, and use and costs of care and
services. This 2010 report focuses on race, ethnicity and Alzheimer's
disease. It reveals that, in 2009, there
were nearly 11 million informal caregivers providing 12.5 billion hours of
care, valued at $144 billion, to people with Alzheimer's disease and other
dementias. For more information,
visit:
Alzheimer's Association
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Powerful Tools for Caregivers Class Leader Training
April 22-23
Legacy Caregiver Services is hosting a Class Leader
Training for the Powerful Tools for Caregivers program April 22-23, 2010 in Portland, Oregon. This two-day training program for
professionals from across the country who work with family caregivers is
$250. Applications are due April 1. For more information, contact Leslie
Congleton at (877) 701-4999 or lconglet@lhs.org.
National Respite Conference Call for Papers
ARCH National Respite
Network is calling for papers for its 2010 National Respite Conference. The conference, hosted this year by the
Maryland Respite Care Coalition, will be held October 24-27 in Baltimore, Maryland. The theme, RESPITE: Create It!, will showcase
the creative ways in which respite care is delivered throughout the
nation. The deadline to submit a
proposal is April 12. For more
information, visit:
ARCH National Respite Network
Alzheimer's Disease Conference on Research, Treatment,
and Care May 27-28
The Shiley-Marcos
Alzheimer's Disease Research Center
at UC San Diego School of Medicine is hosting a conference, "Alzheimer's
Disease: Update on Research, Treatment, and Care," May 27-28, 2010 in San Diego, California. The conference offers innovative and
practical information for all healthcare professionals. For more information, visit:
Shiley-Marcos Alzheimer's Disease Research Center
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Article Highlights Silent Struggle of Being a
Caregiver
An article by
Jonathan Rauch in the April 2010 issue of The
Atlantic describes his experience caring for his aging father and the
stress and struggles associated with caregiving. Rauch makes the point that millions of
Americans are silently dealing with the challenges of caregiving, and he argues
that the issue needs to become a public one and that resources and services
need to be more readily available. To
read "Letting Go of My Father," visit:
The Atlantic
Brookdale Foundation Group Request for Proposals
The Brookdale Foundation Group is requesting proposals for
the start-up of social model Group Respite or Early Memory Loss programs for
people with Alzheimer's disease and their family caregivers. The foundation
will be awarding up to 40 seed grants for these programs. The grants are $7,500
for the first year with an opportunity for a second tier grant of $3,000. Proposals are due at The Brookdale Foundation
Group in New York
on Thursday, July 1, 2010. Award announcements will be made in September. For more information, visit:
Brookdale Foundation Group
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Dementia Caregiver Support Research Study
If you are the
primary caregiver of an individual who has been diagnosed with mild to moderate
dementia, and have been feeling stressed or burdened by your duties, you may be
eligible to take part in a study. The Caregiver Research Program is
based at Rhode Island
Hospital and is part of
the Neuropsychology Program in the Department of Psychiatry and Human Behavior
in the Warren Alpert Medical School of Brown University. The burden of caring
for a family member with Alzheimer's disease or related illness can be
stressful and can take its toll on caregivers' physical and mental health.
Their current project is examining the impact of a telephone intervention on
reducing the stress and burden associated with caring for a person with
dementia. This study, focused on the caregiver, will be enrolling 274 families
through the summer of 2011. For further information contact Kelley O'Connor,
the research coordinator, at 401-444-4528 or koconnor2@lifespan.org. For more information, visit:
Rhode Island Hospital
Family Caregivers of Veterans Survey
The National Alliance
for Caregiving is seeking participants for a new study of family caregivers of
veterans from across the country. This
study is intended to determine how caregivers of veterans are coping and what community
and VA services, resources, and programs would best
support and assist them with their caregiving activities. The study will use discussion groups, telephone
interviews, and an Internet
survey to evaluate the participants. Caregivers
of veterans from World War II, the Korean War, the Vietnam War through the
current conflicts in Iraq
and Afghanistan
will be included in the study. Cash incentives will be available for
study participants and the veterans who refer them. For more information, visit:
Family Caregivers of Veterans Survey
New to Caregiving
PolicyDigest
Caregiving PolicyDigest is
excited to launch this new addition to our newsletter. Research Registry offers a listing of
publically and privately supported clinical trials of interest to family
caregivers and their care recipients with chronic or disabling health
conditions. For information on how you
can list your study in PolicyDigest
or on FCA's website, visit:
Family Caregiver Alliance Research Registry
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To find caregiver support services in your state, visit FCA's Family Care Navigator http://caregiver.org/caregiver/jsp/fcn_content_node.jsp?nodeid=2083
?2010 Family Caregiver Alliance. All rights reserved.
The National Center on Caregiving at Family Caregiver Alliance works to advance the development of high-quality and cost-effective policies and programs for caregivers in every state in the country. The National Center is a central source of information and technical assistance on family caregiving for policymakers, health and service providers, program developers, funders, media and families. For questions or further information about the National Center on Caregiving, contact Policy_Digest@caregiver.org or visit the Family Caregiver Alliance website at www.caregiver.org.
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Caregiving PolicyDigest is a publication of the National Center on Caregiving at Family Caregiver Alliance, 180 Montgomery Street, Suite 1100, San Francisco, CA 94104.
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