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|A newsletter of FCA's National Center on Caregiving
April 8, 2010
Volume X, Number 7
| IN THIS ISSUE
State Legislation, Policy & Reports
- New York: Family Health Care Decisions Act Signed into Law More...
Federal Legislation, Policy & Reports
- Campaign for Better Care Launches Today More...
- Elder Justice Act Signed into Law with Health Care Reform More...
- Spain: Women Bear Caregiving Responsibility More...
- "Family Location and Caregiving Patterns from an International Perspective" More...
Research Reports & Journal Articles
- "Supporting Caregivers in Ethnically Diverse Communities: Focus on Alzheimer's Disease" More...
- Paper Examines Direct Care Worker Training Programs in Community Colleges More...
- "The Impact of Advanced Care Planning on End of Life Care in Elderly Patients" More...
Conferences & Trainings
- American Bar Association Hosts Advance Care Planning Teleconference April 13 More...
- Developing the Care Continuum National Conference August 5-7 More...
Funding, Media & Miscellaneous
- National Family Caregiving Awards Program Accepting Applications More...
- Dementia Caregiver Support Research Study More...
New York: Family Health Care Decisions Act Signed into Law
On March 16, New York Governor David Patterson signed
the Family Health Care Decisions Act into law.
The new law allows family members to make health care decisions on
behalf of patients without advance directives who lose their ability to make
such decisions. The legislation
establishes protocols for health care practitioners to determine whether a
patient has decision-making capacity and for determining the selection of a
surrogate from a list of family members and friends. For more information, visit:
New York Governor
Campaign for Better Care Launches Today
The Campaign for Better Care, which officially launched
April 8, 2010, is a growing movement of
patients, caregivers, advocates and concerned citizens working to ensure the
promise of health reform. Run by the
National Partnership for Women & Families, Community Catalyst and the
National Health Law Program, this multi-year initiative will focus on improving
health care quality, coordination and communication for older patients with
multiple health problems and their family caregivers. One of the Campaign's key goals is to build a
consumer movement of and for older adults with multiple chronic conditions who
are counting on health reform to provide the comprehensive, coordinated,
patient-centered care they need. For more information, visit:
Campaign for Better Care
Elder Justice Act Signed into Law with Health Care
On March 23, 2010,
President Obama signed the Elder Justice Act into law as part of health care
reform legislation. The Elder Justice
Act authorizes funding for Adult Protective Services (APS), provides grants for
Long-Term Care Ombudsman programs, and establishes an Elder Justice
Coordinating Council at the federal level to propose recommendations regarding
coordination of federal, state, local and private agency activities relating to
elder abuse, neglect and exploitation.
Advocates will now start working to secure the authorized funding during
the Congressional appropriations process. For more information, visit:
National Center on Elder Abuse
Spain: Women Bear
Research published in the Spanish Colecci?n de
Estudios Sociales de la Fundaci?n "la Caixa" (Social Studies
Collection of the La Caixa Foundation) reveals that women in Spain
continue to bear the country's caregiving responsibilities for children, older
adults, and those with illness or disability.
Given the aging of the population and increased need for caregiving, as
well as women's increased participation in the workforce, the authors argue
needs a new caregiving model that goes beyond traditional family roles. In
addition, the country needs infrastructures and professional support services,
both of which are currently lacking, to support caregiving families. The research relies on published government
data and other international sources. For
more information, visit:
"Family Location and Caregiving Patterns from an
A Working Paper from CESifo in Germany studies "Family
Location and Caregiving Patterns from an International Perspective." The authors first assessed the relationship
between family structure and the geographic proximity between adult children
and their parents. Then they examined whether differences in family structure
affect the amount of informal care adult children provide to their elderly
parents. Lastly, they looked for cross-country differences in family location
and caregiving patterns. The results
provide a new empirical perspective on the geography of the family, as well as
insights into how family-related and institutional factors affect time adult
children spend with elderly parents. For more information, visit:
Caregivers in Ethnically Diverse Communities: Focus on Alzheimer's
An article in the
February 2010 issue of Clinical
Geriatrics (Volume 18, Number 2) examines Alzheimer's disease in ethnically
diverse communities, with a focus on supporting family caregivers. The article emphasizes that physicians
treating Alzheimer's patients should also pay attention to the needs of their
caregivers, and it describes various interventions for improving caregiver
well-being and reducing caregiver stress.
To read "Supporting Caregivers in Ethnically Diverse Communities:
Focus on Alzheimer's Disease" by Dr. Patrick Griffith, visit:
Paper Examines Direct Care Worker Training Programs in
Longevity Center (ILC) published a Spring 2010 Caregiving Brief called
"Community Colleges and Caregiver Training: Implications for
Policymakers." The paper provides
an overview of the trend toward home and community-based services, highlights
the importance of well-trained direct care workers, and discusses the unique
role community colleges can play in supporting training and education programs
for direct care workers. To date, ILC
has supported 36 of these training programs. For more information, visit:
International Longevity Center
"The Impact of Advanced Care Planning on End of
Life Care in Elderly Patients"
Research published on
March 23, 2010 on BMJ.com reveals that advance care planning improves end of
life care and reduces stress, anxiety and depression in surviving
relatives. The study followed 309
patients age 80 and older in Australia, half of whom were given advance care
planning from trained staff, to study whether the patients' end of life wishes
were known and respected, as well as to evaluate family members' stress,
anxiety and depression. For more
American Bar Association Hosts Advance Care Planning
Teleconference April 13
The ABA Health Law
Section and the ABA Commission on Law and Aging is hosting an Advance Care
Planning Teleconference April 13, 2010 at 2:00 p.m. Central Time. This free teleconference will address the
five biggest myths that plague advance care planning, how to steer clear of
them, and how to make advance care planning more effective. To participate, please contact Simeon Carson at
email@example.com or (312)
Developing the Care Continuum National
Conference August 5-7
The National Hospice and Palliative Care
Organization, in collaboration with the National PACE Association, the National
Association of Social Workers, and the Center to Advance Palliative Care, is
the Care Continuum: Innovative Models to Meet the Unique Care Needs of
Patients/Families." This national
conference will be held August 5-7, 2010 in Boston.
Early registration is now open. For more
National Hospice and Palliative Care Organization
National Family Caregiving Awards Program Accepting
The National Alliance for Caregiving and MetLife
Foundation are now accepting applications for the 2010 National Family
Caregiving Awards Program. Now in its
fifth and final year, the program recognizes the important work of community
agencies and other organizations that support family caregivers as a
significant part of their mission. A
total of nine $20,000 awards will be given in the categories of caregiver
education, caregiver support, and older caregivers caring for adult children
with disabilities. The deadline for
submissions is May 7, 2010. For more
National Family Caregiving Awards Program
Dementia Caregiver Support Research Study
If you are the
primary caregiver of an individual who has been diagnosed with mild to moderate
dementia, and have been feeling stressed or burdened by your duties, you may be
eligible to take part in a study. The Caregiver Research Program is
based at Rhode Island
Hospital and is part of
the Neuropsychology Program in the Department of Psychiatry and Human Behavior
in the Warren Alpert Medical School of Brown University. The burden of caring
for a family member with Alzheimer's disease or related illness can be
stressful and can take its toll on caregivers' physical and mental health. This
project examines the impact of a telephone intervention on reducing the stress
and burden associated with caring for a person with dementia. It is focused on
the caregiver and will be enrolling 274 families through the summer of 2011.
For further information contact Kelley O'Connor, the research coordinator, at
401-444-4528 or firstname.lastname@example.org. For more information, visit:
Rhode Island Hospital
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