Volume X, Number 7, April 8, 2010
 
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Family Caregiver Alliance's Policy Digest
Policy Digest Newsletter
A newsletter of FCA's National Center on Caregiving

Family Caregiver Alliance | National Center on Caregiving | Innovations ClearinghouseContact Us
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April 8, 2010

Volume X, Number 7


IN THIS ISSUE


State Legislation, Policy & Reports
  1. New York: Family Health Care Decisions Act Signed into Law  More...

Federal Legislation, Policy & Reports
  1. Campaign for Better Care Launches Today  More...
  2. Elder Justice Act Signed into Law with Health Care Reform  More...

International News
  1. Spain: Women Bear Caregiving Responsibility  More...
  2. "Family Location and Caregiving Patterns from an International Perspective"  More...

Research Reports & Journal Articles
  1. "Supporting Caregivers in Ethnically Diverse Communities: Focus on Alzheimer's Disease"  More...
  2. Paper Examines Direct Care Worker Training Programs in Community Colleges  More...
  3. "The Impact of Advanced Care Planning on End of Life Care in Elderly Patients"  More...

Conferences & Trainings
  1. American Bar Association Hosts Advance Care Planning Teleconference April 13  More...
  2. Developing the Care Continuum National Conference August 5-7  More...

Funding, Media & Miscellaneous
  1. National Family Caregiving Awards Program Accepting Applications  More...

Research Registry
  1. Dementia Caregiver Support Research Study  More...

New York: Family Health Care Decisions Act Signed into Law


On March 16, New York Governor David Patterson signed the Family Health Care Decisions Act into law.  The new law allows family members to make health care decisions on behalf of patients without advance directives who lose their ability to make such decisions.  The legislation establishes protocols for health care practitioners to determine whether a patient has decision-making capacity and for determining the selection of a surrogate from a list of family members and friends.  For more information, visit:

New York Governor
Campaign for Better Care Launches Today

The Campaign for Better Care, which officially launched April 8, 2010, is a growing movement of patients, caregivers, advocates and concerned citizens working to ensure the promise of health reform.  Run by the National Partnership for Women & Families, Community Catalyst and the National Health Law Program, this multi-year initiative will focus on improving health care quality, coordination and communication for older patients with multiple health problems and their family caregivers.  One of the Campaign's key goals is to build a consumer movement of and for older adults with multiple chronic conditions who are counting on health reform to provide the comprehensive, coordinated, patient-centered care they need.  For more information, visit:


Campaign for Better Care 


Elder Justice Act Signed into Law with Health Care Reform

On March 23, 2010, President Obama signed the Elder Justice Act into law as part of health care reform legislation.  The Elder Justice Act authorizes funding for Adult Protective Services (APS), provides grants for Long-Term Care Ombudsman programs, and establishes an Elder Justice Coordinating Council at the federal level to propose recommendations regarding coordination of federal, state, local and private agency activities relating to elder abuse, neglect and exploitation.  Advocates will now start working to secure the authorized funding during the Congressional appropriations process.  For more information, visit:


National Center on Elder Abuse


Spain: Women Bear Caregiving Responsibility

 Research published in the Spanish Colecci?n de Estudios Sociales de la Fundaci?n "la Caixa" (Social Studies Collection of the La Caixa Foundation) reveals that women in Spain continue to bear the country's caregiving responsibilities for children, older adults, and those with illness or disability.  Given the aging of the population and increased need for caregiving, as well as women's increased participation in the workforce, the authors argue that Spain needs a new caregiving model that goes beyond traditional family roles. In addition, the country needs infrastructures and professional support services, both of which are currently lacking, to support caregiving families.  The research relies on published government data and other international sources.  For more information, visit:


EurekAlert

"Family Location and Caregiving Patterns from an International Perspective"

A Working Paper from CESifo in Germany studies "Family Location and Caregiving Patterns from an International Perspective."  The authors first assessed the relationship between family structure and the geographic proximity between adult children and their parents. Then they examined whether differences in family structure affect the amount of informal care adult children provide to their elderly parents. Lastly, they looked for cross-country differences in family location and caregiving patterns.  The results provide a new empirical perspective on the geography of the family, as well as insights into how family-related and institutional factors affect time adult children spend with elderly parents. For more information, visit:

CESifo

"Supporting Caregivers in Ethnically Diverse Communities: Focus on Alzheimer's Disease"


An article in the February 2010 issue of Clinical Geriatrics (Volume 18, Number 2) examines Alzheimer's disease in ethnically diverse communities, with a focus on supporting family caregivers.  The article emphasizes that physicians treating Alzheimer's patients should also pay attention to the needs of their caregivers, and it describes various interventions for improving caregiver well-being and reducing caregiver stress.  To read "Supporting Caregivers in Ethnically Diverse Communities: Focus on Alzheimer's Disease" by Dr. Patrick Griffith, visit:


Clinical Geriatrics

Paper Examines Direct Care Worker Training Programs in Community Colleges

The International Longevity Center (ILC) published a Spring 2010 Caregiving Brief called "Community Colleges and Caregiver Training: Implications for Policymakers."  The paper provides an overview of the trend toward home and community-based services, highlights the importance of well-trained direct care workers, and discusses the unique role community colleges can play in supporting training and education programs for direct care workers.  To date, ILC has supported 36 of these training programs. For more information, visit:


International Longevity Center


"The Impact of Advanced Care Planning on End of Life Care in Elderly Patients"

Research published on March 23, 2010 on BMJ.com reveals that advance care planning improves end of life care and reduces stress, anxiety and depression in surviving relatives.  The study followed 309 patients age 80 and older in Australia, half of whom were given advance care planning from trained staff, to study whether the patients' end of life wishes were known and respected, as well as to evaluate family members' stress, anxiety and depression.  For more information, visit:


BMJ.com



American Bar Association Hosts Advance Care Planning Teleconference April 13

The ABA Health Law Section and the ABA Commission on Law and Aging is hosting an Advance Care Planning Teleconference April 13, 2010 at 2:00 p.m. Central Time.  This free teleconference will address the five biggest myths that plague advance care planning, how to steer clear of them, and how to make advance care planning more effective.  To participate, please contact Simeon Carson at carsons@staff.abanet.org or (312) 988-5824.




Developing the Care Continuum National Conference August 5-7


The National Hospice and Palliative Care Organization, in collaboration with the National PACE Association, the National Association of Social Workers, and the Center to Advance Palliative Care, is hosting "Developing the Care Continuum: Innovative Models to Meet the Unique Care Needs of Patients/Families."  This national conference will be held August 5-7, 2010 in Boston.  Early registration is now open.  For more information, visit:

National Hospice and Palliative Care Organization



National Family Caregiving Awards Program Accepting Applications

The National Alliance for Caregiving and MetLife Foundation are now accepting applications for the 2010 National Family Caregiving Awards Program.  Now in its fifth and final year, the program recognizes the important work of community agencies and other organizations that support family caregivers as a significant part of their mission.  A total of nine $20,000 awards will be given in the categories of caregiver education, caregiver support, and older caregivers caring for adult children with disabilities.  The deadline for submissions is May 7, 2010.  For more information, visit:

National Family Caregiving Awards Program




Dementia Caregiver Support Research Study

If you are the primary caregiver of an individual who has been diagnosed with mild to moderate dementia, and have been feeling stressed or burdened by your duties, you may be eligible to take part in a study.  The Caregiver Research Program is based at Rhode Island Hospital and is part of the Neuropsychology Program in the Department of Psychiatry and Human Behavior in the Warren Alpert Medical School of Brown University. The burden of caring for a family member with Alzheimer's disease or related illness can be stressful and can take its toll on caregivers' physical and mental health. This project examines the impact of a telephone intervention on reducing the stress and burden associated with caring for a person with dementia. It is focused on the caregiver and will be enrolling 274 families through the summer of 2011. For further information contact Kelley O'Connor, the research coordinator, at 401-444-4528 or koconnor2@lifespan.org.  For more information, visit:


Rhode Island Hospital




To find caregiver support services in your state, visit FCA's Family Care Navigator http://caregiver.org/caregiver/jsp/fcn_content_node.jsp?nodeid=2083

?2010 Family Caregiver Alliance. All rights reserved.

The National Center on Caregiving at Family Caregiver Alliance works to advance the development of high-quality and cost-effective policies and programs for caregivers in every state in the country. The National Center is a central source of information and technical assistance on family caregiving for policymakers, health and service providers, program developers, funders, media and families. For questions or further information about the National Center on Caregiving, contact Policy_Digest@caregiver.org or visit the Family Caregiver Alliance website at www.caregiver.org.

To subscribe or unsubscribe to Caregiving PolicyDigest, use the following link: www.caregiver.org/caregiver/jsp/content_node.jsp?nodeid=836

Or, contact Family Caregiver Alliance using our toll-free phone number: (800) 445-8106

Your subscription information is used only for the purpose of improving this service and tailoring it to the needs of its audience. Information provided to us will not be shared with any other organization, agency, corporation, entity or third party.

Caregiving PolicyDigest is a publication of the National Center on Caregiving at Family Caregiver Alliance, 180 Montgomery Street, Suite 1100, San Francisco, CA 94104.


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