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©Family Caregiver Alliance
 
Connections, e-Newsletter
topFall 2011

Volume 1, Number 3

 www.caregiver.org

(800) 445-8106

Table of Contents 

 

Letter from the Director

Presentations & Workshops 

 

Caregiving Information 

Assistive Technology Survey: Caregiver input needed
Caregiving with Siblings
Long Distance Caregiving
Gallup Survey:
Accessible Technology
Caregiver Health Tips

 

Research Registry 

Pulmonary Hypertension Study

 

Speaker Series 

Independent Living & Brain Injury

 

FCA Staffer Highlighted

Lana Sheridan

 

Promote FCA!

Rate us on Great Non-Profits.org

 

Donor Thank Yous

 

Donate to FCA

Quick Links

 

Caregiver Tool: State-by-State Help 

 

Family Care Navigator

Select a Newsletter

Join Our Mailing List
FCA Facebook

"Like" FCA on Facebook to get caregiving updates

 

Newsletter Credits

 

Editors
Michelle Venegas
Hilary Toyryla 

Production & Graphics
Andrea Orvik
  

Contributors

Sean Coffey
Kathleen Kelly
Lana Sheridan
Tyler Stanley
Hilary Toyryla
Michelle Venegas

Executive Director
Kathleen A. Kelly

Board of Directors 

 

Directors
Herman S. Brown
Claude Everhart
Moira Fordyce
Michael Malewicz
F. Burns Vick
Sue Wong

 

FROM OUR EXECUTIVE DIRECTOR
Kathleen A. Kellyletter
Why We Need Community Living Assistance Services and Supports (CLASS)

by Kathleen Kelly 

(http://blog.caregiver.org)

 

 

Staff from our organization, Family Caregiver Alliance, speak with family caregivers every day through our national information and referral hotline. These caregivers are often facing enormous financial difficulties. For example, adult children who are caring for parents with Alzheimer's, especially in its advanced stages, find that keeping a job and being a caregiver is nearly impossible. The same goes for caregivers of loved ones with multiple conditions, those who are undergoing treatment like chemotherapy or those who simply need assistance with multiple daily activities like eating, dressing and showering. . . [Read more] 

 

workshops PRESENTATIONS & WORKSHOPS
(For information on or to register for any event below, call Hilary Toyryla, Education Coordinator at 800-445-8106, ext. 317)


"How to Talk to Your Doctor" - (9/20: Hayward)

What's the most difficult part of caring for a loved one? The most frequent answer: "Getting the doctor to pay attention to me.". . .  [details] 


"When Everybody Talks and Nobody Listens:
Siblings Working Together"
- (9/22: Castro Valley)

What happens to families when they share the caregiver role? What works and what doesn't . . .  [details]   


Caregiver College 
(10/1: South San Francisco; 10/29: Half Moon Bay; 1/14/12: Walnut Creek; 3/10/12: San Rafael)

If you help care for someone frail, disabled, with a chronic illness or cognitive impairment, then it's back to school for you! Our popular day-long program for learning and sharing is free to all . . .  [details] 


"Decisions, Directions and Reflections: Issues Regarding Placement"
- (12/7: San Leandro)

When is it time for your loved one to go to a facility vs. receiving care at home? Discover the options available to you and how to deal with feelings of guilt . . . [details]     

     
 CAREGIVING INFORMATION 

 

Survey of Family Caregivers on Technology and Changes to the Home

The Family Caregiver Alliance (FCA) is sponsoring a brief survey on how to help more family caregivers receive assistive technology and home modification services. There is great interest in family caregiver experiences, thoughts, and attitudes as they relate to technologies and changes to the home that might help the caregiver or the respective family member. Organizations should send the Survey of Family Caregivers on Technology and Changes to the Home to family caregivers that they are associated with. (This newsletter can be forwarded; instructions are at the bottom of the email).

 

Your responses will let FCA and provider organizations know what family caregivers want and need most so we can customize our programs and services to end-users. If you have questions, you can email adrctae@lewin.com with questions, or you can . . . [Take the survey now]  

 



Caregiving with Your Siblings

Providing care for your aging parents can be complicated. And, depending upon your family dynamics, taking on the challenge together with your siblings can either make the task ten times easier or that much more stressful. Many difficulties arise due to the resurfacing of old childhood roles or simply how each sibling deals differently with the impending loss of a parent that used to care for him or her. . . . [Read the fact sheet] 

 

 

SIBLINGS . . . 

 

Sibling rivalry usually stems from long-term issues that can take years to alter. We can help ourselves by choosing our battles. We don't have to automatically respond to every comment, because not everything is important enough to argue about.

 

If we do respond negatively, we should step back and think about why we are angry. A calm, measured response gives us more control, and may help to diffuse the situation.

 

I am comfortable with my siblings.

 

Excerpted from "The Gift of Caregiving", Daily inspirations, Affirmations and Tips. Author Rebecca Sharp Colmer, EKLEKTIKA Press, Inc., Chelsea, MI 48118, Copyright 2011, ISBN: 978-0-9823250-2-5

 

     


 

Long Distance Caregiving

Caring for a loved one when you live in another town or state can present many obstacles, making the responsibility seem next to impossible. Following are five different aspects to caregiving each with various tips that may help make your role more manageable.

  

Make regularly scheduled visits.

  • Depending on the level of independence, those visits could be occasional or frequent. Use your visits to assess the person's needs.
  • If you cannot visit often, consider having someone who lives near the person take responsibility for care. . . . [Read more]   

 

SUPPORT . . . 

 

Caregivers must have a system of support. We require all kinds of support: equipment support, skills support, support in family situations, support in providing thorough care.

 

I am open to more help.

 

Excerpted from "The Gift of Caregiving", Daily inspirations, Affirmations and Tips. Author Rebecca Sharp Colmer, EKLEKTIKA Press, Inc., Chelsea, MI 48118, Copyright 2011, ISBN: 978-0-9823250-2-5

 


 

Gallup: 72% Of Employed Caregivers Are Caring For A Parent

Gallup recently released data from surveys of employed caregivers, with three in-depth articles. The first article focuses on demographics of caregivers and a trend that the less income and education an American has, the more likely they are to be a caregiver. Twenty-one percent of Americans who make $36,000 or less report that they are caregivers, while only 15% of high income ($90,000+) employees report serving as caregivers. The authors speculate that . . . [Read more]

 

("Read more" link takes you to more on each article and direct links to the Gallup surveys themselves.)  

 


 

Center for Accessible Technology Helps Make Communication Easy, Affordable 

Augmentative and alternative communication (AAC) devices have been around a long time to help people communicate effectively. Traditionally, this type of assistive technology cost thousands of dollars and required sophisticated knowledge to set up and use. However, with the introduction of the iPad®, its ready availability and the ease with which free or inexpensive applications can be developed and loaded onto them, AAC is now potentially available to a much wider audience . . .   [Read more]

 


 

Caregiver Tips to Help You Find Balance in Your Life

Caregivers spend so much of their time attending to the needs of others that they sometimes forget to take proper care of themselves. We're including a quick and helpful checklist of sorts to help you stay healthy, prepared and confident in your ability to continue caring well for others . . . [Go to list] 

  

List of tips was adapted from "Tips for Successful Aging" published by the Public Information Committee of the Marin County Commission on Aging, which appeared originally in Great Age, their quarterly newsletter.

  
researchRESEARCH REGISTRY
Dr.'s Clipboard

Help doctors research pulmonary hypertension treatment

 

If you or a loved one suffer with pulmonary arterial hypertension (PAH) or chronic thromboembolic pulmonary hypertension (CTEPH) and the symptoms they bring - shortness of breath, fatigue, chest pain and more - consider participating in this research study of an investigational medication.


By participating, you may help researchers learn more about this disease and evaluate the effectiveness and safety of an investigational medication. What's more, you may receive study-related care, monitoring and medication at no-cost to you. Take the online study questionnaire now to see if you may qualify. Go to www.phclinicalstudy.com today for more information.

 

speakerSpeaker Series - San Francisco

Independent Living and Brain Injury

A new speaker series will be presented by The Janet Pomeroy Center San Francisco Traumatic Brain Injury NETwork, in September and runs through the month. The first presentation on September 2, 2011 spotlights Dr. Todd Schirmer speaking on "Types of brain injuries and associated concerns." To view a full list of the series' topics and speakers . . . [click here]

 

Presentations are FREE and start promptly at 9am, ending at 12pm. Accommodations available upon request; space is limited. Pre-registration required by August 25th, 2011. Email Rowena Fontanos at The Janet Pomeroy Center.

 

staffSTAFF MEMBER HIGHLIGHTED
Lana Sheridan

 

Lana Sheridan,  

Senior Administrative Assistant

 

Lana Sheridan's vital position as Senior Administrative Assistant at Family Caregiver Alliance is one she fills to perfection. Capping 11 years at FCA this coming October, she fulfills a myriad of responsibilities to include, among many, coordination of all aspects of FCA's annual fund raising appeal from document preparation to entries in the electronic database, maintaining multiple agency mailing lists through the online marketing tool, Constant Contact, besides being the "go to" person to all staff agency-wide. Following is a comment from a staff member with whom Lana works:
"Lana is a gift to FCA. In addition to sharing her administrative skills, she is incredibly flexible, patient and kind. She doesn't think twice about lending a hand to help staff and clients alike. The staff recently held an impromptu "we love you Lana" day to thank her for all she gives of herself everyday."
promoteHELP PROMOTE FCA! 
Great Non-Profits logo
Help Us Reach More Caregivers:
Provide Your Positive Review of FCA on GREATNonprofits.org

 gold stargold stargold stargold stargold star

"[FCA is] A capable single point source for information to support the caregiver. A valuable service, staffed by knowledgeable, caring individuals." - Alexander N 

 

Have you had a positive experience with Family Caregiver Alliance? Whether it's from a personal exchange with a Family Consultant, reading our helpful fact sheets to assist you with a difficult aspect of caregiving, or using the tools on our award-winning web site, we want to hear from you!

Just visit our Great Nonprofits page, and click the "Write a Review" button just above our logo. A big thank you goes out to our first reviewer (above) for providing a 5-star rating!


 
donorsGIFTS FROM THE HEART
heart-shaped money-box with ribbon

A quarterly thank you to our donors and supporters . . .

In every edition of Connections, we take a moment to extend a warm thank you to the many generous supporters who make the work we do possible through thoughtful donations to Family Caregiver Alliance . . . [Read more]      

For over 30 years, Family Caregiver Alliance has offered programs to support and sustain the important work of families and friends caring for loved ones with chronic, disabling health conditions. FCA offers programs at national, state and local levels. The National Center on Caregiving was established at FCA in 2001 to advance the development of high-quality, cost-effective services and policies nationwide. A wealth of caregiving advice, resource listings, newsletters, fact sheets, research reports, policy updates and discussion groups are available free on the FCA website. Visit www.caregiver.org or call (800) 445-8106 for more information.

 

2011 Family Caregiver Alliance. All Rights Reserved. No portion of this newsletter may be reproduced without the express permission of Family Caregiver Alliance.

 

 

 

180 Montgomery Street, Ste. 900, San Francisco, CA 94104

www.caregiver.org | 415.434.3388 

 

 

 




  © 2011 Family Caregiver Alliance. All Rights Reserved. No portion of this newsletter may be reproduced without the express permission of Family Caregiver Alliance. 

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