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|A Newsletter of FCA's National Center on Caregiving|
June 22, 2011
Volume XI, Number 11
State Legislation, Policy & Reports
- WI: Enacted Budget Gill Grants Governor Broad Powers Over Medicaid More...
- Philadelphia: City Council Approves Paid Sick Leave But Mayor May Veto More...
- CA: Foundations Release Blueprint For Partnership With State To Improve LTC System More...
- CA: Controller Withholds Pay For Legislature, Budget Still Not Approved More...
Federal Legislation, Policy & Reports
- Hearing Focuses On Older Americans Act And Senior Hunger More...
- HHS Informs States On Options To Equalize Spousal Impoverishment Rules More...
- Bill Introduced To Repeal Maintenance Of Effort Requirements In Medicaid More...
- HUD Awards $31 Million In Funding To Help With "Aging In Place" More...
- Canada: "Caregiver Recognition Act" Introduced More...
- UK Report: Average Nursing Care Costs $41,864 But Average Pension is $22,580 More...
- Australia: Nursing Home Begins Using GPS Tracking Devices For Residents More...
Research Reports & Journal Articles
- Report: Caregivers Forgo $303,880 In Lost Wages, Pension, And Social Security More...
- Report: 15 Million Americans Aged 65+ Will Have Poor Transit Access By 2015 More...
- Report: Rural Elders In California Face Higher Health Risks More...
- Study: Rehospitalizations Reduced With Intervention More...
- PHI Provides Roadmap For Improving Direct Care Jobs And Quality Of Care More...
Conferences & Trainings
- New Fact Sheet: Caregiving With Your Siblings More...
- Webinar: Reducing Preventable Complications During Care Setting Transitions: July 6th, 3pm (Eastern) More...
- Webinar: Budget Battles: Threats To Medicaid: June 30, 3:00pm (Eastern) More...
- Conference: Generations United Generations United Conference: July 26-29 2011 More...
Funding, Media & Miscellaneous
- Rosalinde Gilbert Innovations in Alzheimer's Disease Caregiving Legacy Awards More...
- Husband Allegedly Fired For Requesting Flexible Schedule To Care For Wife With Cancer More...
- Administration On Aging Grants More...
- Nominations Being Accepted For Advisory Council On Alzheimer's Research, Care, And Services More...
- Focus On Adult Day Programs and Seniors Centers In FL, ME, And VA More...
If you are interested in having your registry listed, please contact firstname.lastname@example.org
WI: Enacted Budget Gill Grants Governor Broad Powers Over Medicaid
The recently passed state budget in Wisconsin gives Governor Walker's administration the ability to remake Wisconsin's Medicaid program with relatively little legislative oversight. The Department of Health and Services is expected to use this power to find $466 million in savings for the next two years. While an earlier version of the bill required the department to hold public hearings, the budget bill that passed did not include this requirement. The department will still need to give notice to the Joint Finance Committee of any pending changes and the committee has 14 days to decide whether or not to hold hearings. Advocates interviewed by the Journal Sentinel were concerned about the abdication of power by elected representatives, the precedent of giving the power to the administration, and the potential changes that will be made to shave $466 million from the program. Medicaid is jointly financed by the federal government which would also have to approve any significant changes. While Governor Walker and the legislature both increased funding for Medicaid in the state budget, the increased federal funding provided under the Recovery Act will end at the end of June. The Center on Budget and Policy Priorities reports that to date, at least 42 states and Washington DC report projected budget shortfalls for FY 2012 totaling $103 billion, with only $6 billion in federal Recovery dollars still available. The New York Times notes that additional federal stimulus dollars for Medicaid haven't been proposed by Congress or the President, despite a higher number of beneficiaries now than when the extra federal funding was approved in February 2009. For more information, visit:
Milwaukee Journal Sentinel: "Budget bill gives Walker more power over Medicaid programs"
Center on Budget and Policy Priorities: "States Continue to Feel Recession's Impact"
New York Times "As Number of Medicaid Patients Goes Up, Their Benefits Are About to Drop"
Philadelphia: City Council Approves Paid Sick Leave But Mayor May Veto
The Philadelphia City Council approved legislation earlier this month to create paid sick leave for employees to use for their own health problems or to provide care for a sick family member. Through the bill, employees would accrue a minimum of one hour of paid sick time for every 40 hours worked in Philadelphia, however, employees can't accrue more than 56 hours of paid sick time in a calendar year unless their employer sets a higher limit. For small businesses (more than five employees but less than 11), employees can't accrue more than 32 hours of paid sick time in a calendar year unless the employer sets a higher limit. Employers with fewer than five employees are not subject to the law, nor are employers whose provision of paid leave is subject to collective bargaining agreements. While employees begin accruing time as soon as they start working, they can't use paid sick leave until after they have been employed at least 90 days. Media reports have speculated that Mayor Nutter will veto the bill and if he does veto it, the bill will likely die because it would need 2/3 of the city council supporting it in order to overrule the Mayor's veto. For more information, visit:
City of Philadelphia: Bill 080474-AA Text
Earlier this year, seven California foundations released a "Blueprint for Partnerships Between California Foundations and State Policymakers" to address ways in which the foundations can collaborate with the state to improve California's Aging and Long-Term Care system. The blueprint explains that California pioneered program development during the 1970s and 1980s with programs like Alzheimer's Day Care Resource Centers, Adult Day Health Care, and On Lok, the incubator for PACE programs that have been replicated in other states. However, budget cuts, system fragmentation, term limits, and financing challenges have weakened the state's LTC system. Citing a projected 100% increase of older adults in California over the next 20 years, the report proposes ways for the seven foundations to partner with the state, including assistance with California's Section 1115 Medicaid waiver and the transition into a managed care delivery system.
A recent policy brief from the Kaiser Commission on Medicaid and the Uninsured notes that the federal government will provide almost $8 billion in matching funds to California over the course of five years as part of the waiver. The foundations also suggest providing assistance with administrative restructuring to break down silos, expand "single points of entry," and use a common eligibility tool standardized for institutional and home and community based programs. The foundations offer to assist with public education and outreach to consumers around the potential need for long-term care and offer assistance in research, evaluation, technical assistance and capacity building. For more information, visit:
Earlier this week, California Controller John Chiang announced that he will withhold pay for the state legislature because the budget they presented on June 15th was not balanced. The legislature presented a budget to Governor Brown last week, who promptly vetoed it. According to the Sacramento Bee, Governor Brown is still trying to attract four GOP votes (two in each house) to temporarily extend taxes on sales and vehicles as well as to hold a fall election to address taxes, pensions, and state spending. The Governor explained that he will propose alternative budget ideas to the legislature on June 23. The reduction or elimination of the Adult Day Health Care (ADHC) as a Medi-Cal benefit has continued to receive widespread attention. A recent article in Stateline noted the irony in the ADHC program being created during Governor Brown's first term in 1977 but eliminated during his third term. ADHC has been cited as a model for similar programs that exist in 49 other states and serve an estimated 260,000 people. For more information, visit:
Hearing Focuses On Older Americans Act And Senior Hunger
A hearing yesterday focused on the Older Americans Act (OAA) and the role it plays in allowing seniors to age in place by connecting them with food and nutrition though programs including home delivered nutrition services, Congregate Nutrition Services, and Nutrition Services Incentive Program. Chairman Sanders (I-VT) released a report in conjunction with the hearing, and explained that he sees senior hunger as a financial and moral issue for the one million seniors who go hungry because they can't afford food. Senator Paul (R-KY) explained that as a doctor he sees malnutrition as an important issue, but suggested that there are duplicitous programs and that private charities may be a better solution. Senator Franken (D-MN) discussed hearings he has held across Minnesota and the support he has heard from constituents about OAA-funded programs. He also explained that drivers for programs like Meals on Wheels are often the only point of contact for people during the day, break isolation for the recipients, allow people to remain in their homes, and can be the first people to notice if/when seniors have emergencies. Witnesses at the hearing included Assistant Secretary Greenlee, who explained that nutrition programs address not just the lack of financial ability to buy food, but also functional limitations for people who can't see, drive to a grocery store, or prepare their own meals. Greenlee also explained that every federal dollar is leveraged by three dollars at the state and local levels. Dr. Mary Jane Koren, a geriatrician, explained the importance of nutritious meals in preserving older adult's health, citing the examples of falls resulting in more injuries for adults who are not receiving sufficient nutrition. For more information, visit:
Subcommittee Hearing - Senior Hunger and the Older Americans Act
Report: "Senior Hunger: The Human Toll and Budget Consequences"
HHS Informs States On Options To Equalize Spousal Impoverishment Rules
The Department of Health and Human Services sent a letter earlier this month to state Medicaid directors, informing them of existing options and flexibility to address rules that often result in uneven financial treatment for same-sex couples by Medicaid. Under current rules, Medicaid can impose liens against the property of a Medicaid beneficiary to recover costs. However, liens may not be imposed if spouses, children under 21 or who are blind or totally/permanently disabled, and siblings are lawfully residing in the home. HHS notes that this exclusion represents a "floor" from protection against liens and suggests that states have considerable flexibility in determining a "ceiling" for such protections. In other words, states could choose to not pursue liens when same-sex spouse or domestic partner beneficiaries continue to lawfully reside in the home. The letter also addresses asset transfers by Medicaid beneficiaries and explains that state Medicaid policies could address whether or not asset transfer penalties would create an undue hardship on a same-sex spouse or domestic partner. HHS notes that states also have flexibility around estate recovery and applying liens to pay for the assistance a deceased Medicaid beneficiary received. States are required to have procedures to waive estate recovery where it would create an undue hardship for the heirs, and states could include same-sex spouses or domestic parents in these procedures.
A September 2010 Fact Sheet from SAGE, MAP, and CAP, noted that Massachusetts and Vermont extend spousal impoverishment protections to married same-sex couples and that Washington State passed legislation to prevent the recovery of assets transferred to a same-sex or heterosexual domestic partner where a similar asset transfer by a married couple would have been allowed. The National Resource Center on LGBT Aging recently announced several new resources for LGBT older adults, including an interactive map with state-level legal resources, as well as informative articles on wills, advance directives, and financial power of attorney. For more information, visit:
HHS June 10th Letter "Same Sex Partners and Medicaid Liens, Transfers of Assets, and Estate Recovery"
LGBT Older Adults and Long-Term Care Under Medicaid
National Resource Center on LGBT Aging Introduces Legal and Financial Support Resources
Bill Introduced To Repeal Maintenance Of Effort Requirements In Medicaid
Senator Orrin Hatch (R-UT) introduced legislation (S 868) in May to eliminate Maintenance of Effort Requirements (MOE) in Medicaid. When states accepted federal stimulus money, the increased FMAP was tied to MOE requirements mandating that states maintain current eligibility rules for adults until 2014. As unemployment increased, more people became eligible for Medicaid, increasing the strain on state budgets, especially with the increased FMAP ending at the end of this month. For more information, visit:
Kaiser Health News: "Hatch Urges Changes To End Medicaid 'Gulag'"
"State Flexibility Act: S 868"
HUD Awards $31 Million In Funding To Help With "Aging In Place"
The U.S. Department of Housing and Urban Development (HUD) announced earlier this month that it is awarding $31 million in funding to public housing authorities, resident associations and non-profit organizations. The funding will be used to hire or retain Service Coordinators who work directly with residents to connect them with resources, including education and job training. The Coordinators also connect elderly and disabled residents with supportive services to improve their living conditions and allow residents to "age in place" instead of moving to more costly assistive care facilities. For more information, visit:
HUD: "HUD Awards $31 Million to Promote Jobs, Self-Sufficiency"
Canada: "Caregiver Recognition Act" Introduced
Legislation was introduced in May in Manitoba to better recognize and support family caregivers. The Caregiver Recognition Act would institute a progress report every two years to evaluate caregiver needs and supports; create a caregiver website with centralized information on support groups, financial benefits, and human-resource policies; and also create a Caregiver Advisory Committee to provide information and advice to the Healthy Living, Youth, and Seniors Minister. The Act would also proclaim the first Tuesday in April as Caregiver Recognition Day, and would create general principles relating to caregivers and their treatment by the public, health professionals, and their employers. In making the announcement, the Minister noted that a 2007 survey found that about one in five Manitobans aged 45 and over reported serving as a caregiver to an older adult. The Manitoba government also recently included a 25% increase in the maximum annual Primary Caregiver Tax Credit, now worth $1,275 per care recipient. The legislation is part of the "Age-Friendly Manitoba Initiative," started in 2008 to allow older Manitobans to age in place. For more information, visit:
Manitoba Government "Caregiver Recognition Act"
UK Report: Average Nursing Care Costs $41,864 But Average Pension is $22,580
A recent report on the cost of institutional long-term care in Britain found that the average cost of a single room in a private residential home in Britain now costs ?11,965 ($19,300) a year more than the average pension. It is estimated that 20,000 people in the United Kingdom sell their homes every year to pay for long-term care. The report is based on government data, a survey of more than 1,000 adults, interviews with 400 elderly people receiving care at home (and their families) and a survey of 55 residential homes. Experts suggest that care homes, struggling because of reduced reimbursement rates from local councils, may be increasing the price of care for residents who don't receive government support. Wales has the cheapest average rates at ?17,680 per year ($28,519) while London's rate is the highest and averaged ?30,784 ($49657) a year. For more information, visit:
The Telegraph: "Care home place costs double the average pensioner's income"
Australia: Nursing Home Begins Using GPS Tracking Devices For Residents
A recent article in the Herald Sun profiled a nursing home in Melbourne that will begin fitting GPS tracking devices on elderly residents with dementia. The decision was made after a resident wandered and died. However, advocates cite minimum staffing ratios of one staff member per five children for childcare centers and suggest that mandating similar staffing ratios in nursing homes would be more helpful in preventing residents from wandering. According to Australian government data, 745 residents went missing in fiscal year 2009-10. The nursing home will also offer families the option of having residents with dementia wear a wristband that will trigger a loud alarm if they approach a door. For more information, visit:
Herald Sun: "Aged care advocates angered at GPS plan for elderly"
Report: Caregivers Forgo $303,880 In Lost Wages, Pension, And Social Security
The National Alliance for Caregiving recently released a report: "Double Jeopardy for Baby Boomers Caring for Their Parents" that details the financial impacts on caregivers who stop working to provide care for a parent. Using data on 1,112 people from the 2008 panel of the National Health and Retirement Study, the authors conclude that the total lost wages, pension and social security benefits for the 9.7 million adult children who are serving as caregivers in the U.S. equals almost $3 trillion. The authors also explain that in a 1994 study, 3% of men and 9% of women reported providing care (defined as 100 hours or more of basic care in the past two years) and these figures more than tripled to 17% of men and 28% of women in 2008. Employees who are aged 50 are older are often in their prime earning years, and the authors suggest that people should consider not only the immediate impact of stopping work to be a caregiver, but also the longer term impacts of reduced retirement and Social Security benefits. For more information, visit:
National Alliance for Caregiving "Double Jeopardy for Baby Boomers..."
Wall Street Journal "Toll of Caring for Elderly Increases"
Report: 15 Million Americans Aged 65+ Will Have Poor Transit Access By 2015
A recent report analyzed the adequacy of public transportation in 241 metropolitan areas with a population of 65,000 or more in the year 2000 and found that 11.5 million Americans aged 65 and older experienced poor transit access. The authors project that if the trend to "age in place" continues (a trend preferred by 88% of adults aged 65 or older), then 15.5 million older Americans will experience poor transit access by 2015. This trend is worse in rural communities, where approximately 40% of rural residents lack access to public transportation. While older adults prefer to continue driving, more than 20% of seniors aged 65 and older do not drive at all. The author's suggestions include providing increased, dedicated funding for a variety of public transportation options. They also suggest that transit programs should continue receiving funding from the Highway Trust Fund and state and local departments of transportation as well as transit operators are encouraged to involve seniors and community stakeholders when developing transportation plans. The authors suggest allowing states to retain the ability to flexibly spend their highway funds in order to better tailor their approach. For more information, visit:
Transportation for America: "Fixing the Mobility Crisis Threatening the Baby Boom Generation"
Madison.com "Biz Beat: Aging Boomers Need Transit, Report Warns"
Report: Rural Elders In California Face Higher Health Risks
A recent report from the UCLA Center for Health Policy Research finds that the approximately 710,000 Californians aged 65 and older who live in rural areas face unique health challenges. Rural elders are more likely to be overweight or obese (61.3%) as compared to their urban (57.3%) or suburban (54%) counterparts. One in five rural elders do not engage in moderate or vigorous physical activity. In addition, one in five low-income older adults living in rural settings report that they cannot consistently afford enough food for the entire month, a rate that is about twice that of their counterparts in suburban areas. Rural adults also have higher rates of heart diseases and repeated falls.The authors of the study provide policy recommendations, including senior walkability plans and using the internet for in-home monitoring, patient self-management, and online prescription ordering. They also suggest incentivizing primary care providers to work in rural areas, improving/expanding transportation services, and providing federal subsidies and loans for rural grocery stores and other food outlets. For more information, visit:
UCLA: "Out of reach? Rural elders have high rates of obesity, diabetes, heart disease"
Study: Rehospitalizations Reduced With Intervention
The June issue of the Journal of the American Geriatrics Society featured a study which used a three-pronged intervention approach to reduce avoidable rehospitalizations for patients being discharged from a skilled nursing facility (SNF). The intervention includes a standardized template for physician admissions procedures, palliative care consultations for patients with three or more hospital admissions in the past 6 months, and root-cause analysis conferences for patients transferred back to the hospital that are conducted on a bi-monthly basis. The intervention took place at a SNF with 50 beds, and included 862 patients (baseline) and 863 patients (who received the intervention) who were admitted to the SNF from acute care hospitals between June 2008 and May 2010. For patients who received the intervention, readmissions to acute care declined (from 16.5% to 13.3%), and patients were more likely to die at the SNF in accordance with their wishes than to be transferred out to a hospital. Discharges to homes also increased from 68.5% to 73%, and discharges to long-term care dropped to 11.5% from 13.8%. "The change in discharge disposition observed between the two periods, we believe, reflects an improvement in patient outcomes," says lead author Randi E. Berkowitz, M.D. For more information, visit:
Journal of the American Geriatrics Society: "Improving Disposition Outcomes for Patients in a Geriatric Skilled Nursing Facility" (abstract free, subscription required for article)
EurekAlert: "Reducing avoidable rehospitalizations among seniors"
USA Today: "Better-informed patients can help cut costs, study shows"
PHI Provides Roadmap For Improving Direct Care Jobs And Quality Of Care
A recent report from PHI outlines challenges and opportunities to improving the quality of direct care provided to care recipients while also improving the quality of direct care jobs. Citing the 4.5 million elders and people with disabilities who currently receive care in the U.S., the 3.2 million direct-care workers who provide these services, and the expected growth in need for this workforce, the author outlines a number of challenges and strategies. One of the key issues is compensation for direct care workers- the median hourly wage in 2009 was $10.58 as compared to the median for all U.S. workers of $15.95. In addition to low wages, direct care workers also face a lack of hours (48% in 2009 worked less than full-time year-round), and lack access to health care, with an estimated 900,000 direct-care workers in 2009 lacking health care coverage. The author outlines nine elements of quality jobs as well as essential elements of quality care for consumers, including self-direction, keeping dignity and privacy, and individualized care. For more information, visit:
PHI: "Improving Jobs and Care A National Sector Strategy"
Family Caregiver Alliance recently hosted Francine Russo on a webinar entitled "Family Caregiving: Work With Your Siblings To Keep Your Life, Family, and Sanity Intact!" and a follow-up fact-sheet is now available on FCA's Web site. The fact sheet provides strategies on how to avoid reverting to old sibling roles ("the nurturing one" or the "over-achiever") and how to have realistic expectations about caregiving. For example, while it's possible to keep a parent safe and secure, it may not be realistic to feel responsible for ensuring that a parent is happy 100% of the time. Eight detailed suggestions for working with siblings are included in the fact sheet. For more information, visit:
FCA Fact Sheet: "Caregiving With Your Siblings"
FCA Archived Webinar: "Family Caregiving: Work With Your Siblings To Keep Your Life, Family, and Sanity Intact!"
As part of the Department of Health and Humans Services' "Partnership for Patients" initiative, the National Priorities Partnership is sponsoring a Patient Safety Webinar Series. The next webinar, titled "Care Transitions" will take place on July 6, at 3:00pm (Eastern) and will focus on decreasing preventable complications from one care setting to another, with a goal of reducing hospital readmissions by 20%. Presenters include Mary Naylor, PhD, RN, Professor in Gerontology, University of Pennsylvania School of Nursing and Eric Coleman, MD, MPH, Chief Medical Officer, at the University of Colorado Health Sciences Center. For more information or to register for this or future webinars in the series, visit:
"Reducing Preventable Complications During Care Setting Transitions"
Patient Safety Webinar Series
Webinar: Budget Battles: Threats To Medicaid: June 30, 3:00pm (Eastern)
Several proposals to change Medicaid have been introduced in the 112th Congress, including a proposal by Representative John Ryan (R-WI) to block-grant Medicaid. Wider Opportunities for Women is sponsoring a webinar that is intended for advocates and will address how to communicate about the role of Medicaid. Speakers include Jennifer Beeson, Director of Government Affairs at Families USA; Renate Pore, Health Policy Analyst at the West Virginia Center on Budget & Policy; and Andy McDonald, Managing Director of BerlinRosen's national advocacy practice. Please note: This webinar has an advocacy focus. For more information, or to register, visit:
Wider Opportunities for Women: "Threats to Medicaid"
Conference: Generations United Generations United Conference: July 26-29 2011
Generations United 16th annual international conference will take place in Washington, DC from July 26-29, and the theme this year is "Rethinking and Revitalizing Intergenerational Connections." The conference will feature over 60 workshops, roundtables, and poster sessions, and also a symposia, sponsored by the National Center for Creative Aging that will focus on the arts as a tool in creating learning opportunities across the lifespan while also building social and economic capital in communities. For more information, or to register, visit:
Generations United's: 16th International Conference
Rosalinde Gilbert Innovations in Alzheimer's Disease Caregiving Legacy Awards
Family Caregiver Alliance recently announced that applications are now available for the fourth annual Rosalinde Gilbert Innovations in Alzheimer's Disease Caregiving Legacy Awards. The awards are given in three categories, Creative Expression, Diverse & Multicultural Communities, and Policy & Advocacy. Each of the three award recipients receive a $20,000 award, and applications are invited from non-profits, government agencies, and universities. The application deadline is August 15th, 2011. For more information or to view the application, visit:
FCA: "Rosalinde Gilbert Awards Application"
Husband Allegedly Fired For Requesting Flexible Schedule To Care For Wife With Cancer
An ABC News article focused on a man who is a caregiver for his wife with lung cancer and who was allegedly fired for requesting a more flexible work schedule to enable him to provide care to his wife. Carl Sorabella, an accountant for a real estate company in Massachusetts, had worked for the company for 14 years, and had received a raise this past November. According to Sorabella, he requested a flexible schedule so that he could accompany his wife to medical appointments, and the following week he received notice that he was fired. David Frank, a legal analyst with Lawyers Weekly, was interviewed for the story and explained "This is not an unprecedented situation," and cited the fact that the Family Medicaid Leave Act (FMLA) only covers employers with 50 or more employees. Sorabella estimated that his company employs 20 people. An article in the Chicago Tribune this week highlighted the financial and legal challenges that people with cancer (and their caregivers) often encounter. The article also profiled the Cancer Legal Resource Center (CLRC), a joint initiative between the Disability Rights Legal Center and Loyola Law School Los Angles. The program operates a national toll-free-assistance line (866-THE-CLRC) and is also sponsoring three conferences this summer (in Chicago, Washington, DC, and Ann Arbor, Michigan) that will focus on cancer-related legal issues. For more information, visit:
ABC News "Man Says He Was Fired After Telling Employer His Wife Has Cancer"
Chicago Tribune "Cancer patients get help through financial, health care mazes"
Cancer Legal Resource Center
Administration On Aging Grants
The Administration on Aging announced that it will award up to $14 million in competitive, 3-year cooperative grants to State Units on Aging. The grant includes two parts: Part A addresses evidence-based systems for older adults, individuals with disabilities, and family caregivers, while Part B addresses creating dementia capable, sustainable service systems for people with dementia and their caregivers. Applicants are encouraged to apply for Part A and Part B together. According to the grant announcement, successful applicants will agree to implement service systems on two levels: between the state and local communities to implement and sustain a statewide system and across health and human service systems to streamline and facilitate enrollment in a comprehensive array of high quality services and supports. AOA requests a letter of intent by June 27, 2010, and the deadline for the grant application is July 27, 2011. For more information, visit:
Administration on Aging Grant Announcement
Nominations Being Accepted For Advisory Council On Alzheimer's Research, Care, And Services
The National Alzheimer's Project Act, passed earlier this year, requires Secretary Sebelius to establish this advisory council that will provide advice and consultation to the Secretary on reducing the burden of Alzheimer's disease and related dementias on people with the disease as well as their caregivers. The council is composed of 22 members, ten will be from Federal agencies and 12 will be non-Federal members, including Alzheimer's caregivers, health care providers, State health department representatives, Alzheimer's researchers, and voluntary health association representatives. Terms are for four years and the council will meet quarterly. HHS is currently accepting nominations for non-Federal members of the Advisory Council, and nominations are due before COB on June 30, 2011. For more information or to submit a nomination, visit:
Federal Register [Federal Register Volume 76, Number 112 (Friday, June 10, 2011)]
Focus on Adult Day Programs And Seniors Centers In FL, ME, And VA
Several Adult Day Care, and Senior Center programs were recently profiled as important supports for older adults and their family caregivers. Florida Public Radio focused on family members of adults who attend a local Adult Day Care program, and the executive director explained that the number one element leading to caregiver burnout is "not being able to get away." A program manager explains that the program helps both the caregiver and the care recipient, who gets out of the house, has social interaction, and can play memory-stimulating games. Two senior centers profiled in the Washington Post in Virginia provide lunch and activities including aerobics, dancing, cards, bowling and language and computer classes and two dance groups: the "Happy Hoofers" and "Oldies but Goodies." Prince William County supervisors recently voted to implement a $2 "drop-in" fee or a $25 annual fee for participants. In Maine, about 25 men and women attend the Truslow Adult Day Center every day. The program charges $14 an hour, however, this fee is sometimes reduced or covered by insurance plans, and one of the profiled participants, a veteran, has his fees covered by the Veteran's Administration. For more information, visit:
Florida Public Media: "Adult Day Care: A Resource for Caregivers" (includes video)
Washington Post: "Senior centers are a saving grace for Prince William's older residents"
Morning Sentinel: "Caring for aging parents can overwhelm"
|To find caregiver support services in your state, visit FCA's Family Care Navigator http://caregiver.org/caregiver/jsp/fcn_content_node.jsp?nodeid=2083|
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The National Center on Caregiving at Family Caregiver Alliance works to advance the development of high-quality and cost-effective policies and programs for caregivers in every state in the country. The National Center is a central source of information and technical assistance on family caregiving for policymakers, health and service providers, program developers, funders, media and families. For questions or further information about the National Center on Caregiving, contact Policy_Digest@caregiver.org or visit the Family Caregiver Alliance website at www.caregiver.org.
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