Data Sources for Statistics

Caregivers Count Too!
An Online Toolkit to Help Practitioners Assess the Needs of Family Caregivers

Main Page
Introduction
Section 1 - Getting Started
	What is the Caregivers Count Too! Toolkit?
	Who Should Use This Toolkit?
	How is the Toolkit Organized?
	Definitions
Section 2 - Vital & Vulnerable: Family Caregivers
	Who Are Family Caregivers?
	Why Are Family Caregivers Vital to Health Care and Long-Term Care Today?
	Why Should We Assess the Needs of Family Caregivers?
	Online Resources for More Information
	Data Sources for Statistics
Section 3 - The Nuts & Bolts of Caregiver Assessment
	Getting Started
	What Should a Family Caregiver Assessment Include?
	Who Should Be Assessed?
	Who Should Conduct a Family Caregiver Assessment?
	When Should a Family Caregiver Assessment Happen?
	Where Should a Family Caregiver Assessment Take Place?
	Fundamental Principles of Caregiver Assessment
Section 4 - Wrapping Up
	Next Steps
	Examples of Caregiver Assessment Tools
	FCA Resources on Caregiver Assessment
	Selected Annotated Bibliography for Caregiver Assessment
Download the Full Toolkit (File size 3 MB, 45 seconds broadband \| 7 minutes 56kps modem)

Make a Donation to FCA

Data Sources for Statistics

Agency for Healthcare Research and Quality. (2000). Long-term Care Users Range in Age and Most do not Live in Nursing Homes: Research Alert. Rockville, MD: Author.

Alecxih, L. M. B., Zeruld S., & Olearczyl, B. (2001). Characteristics of Caregivers Based on the Survey of Income and Program Participation. [National Family Caregiver Support Program: Selected Issue Briefs.] Falls Church, VA: The Lewin Group.

Arno, P. S. (2006). The Economic Value of Informal Caregiving: 2004. Presented January 25-27 at the Care Coordination & the Caregiver Forum, Bethesda, MD: Department of Veteran Affairs, NIH.

Bass, D. (2002). Content and Implementation of a Caregiver Assessment. [Issue Brief]. Washington, D.C.: Administration on Aging.

Feinberg, L.F (2004). The State of the Art: Caregiver Assessment in Practice Settings. San Francisco, CA: Family Caregiver Alliance.

Komisar, H. & Thompson, L. (2004). Who Pays for Long-term Care? Fact Sheet, Long-Term Care Financing Project. Washington, DC: Georgetown University Press.

National Alliance for Caregiving & AARP. Caregiving in the U.S. Bethesda, MD: National
Alliance for Caregiving, 2004.

Older Women’s League. (2003). Women and Long-term Care. Retrieved from: www.owl-national.org

Schulz, R., O-Brien, A.T., Bookwala, J. & Fleissner, K. (1995). Psychiatric and physical morbidity effects of dementia caregiving: Prevalance, correlates, and causes. The Gerontologist, 35:771-791.

Spector, W. D., Fleishman, J., Pezzin, L. & Spillman, B. (2000). The Characteristics of Long-Term Care Users. AHRQ Publication No. 00-0049. Rockville: Agency for Healthcare Research and Policy.

The Henry J. Kaiser Family Foundation, Harvard School of Public Health, United Hospital Fund of New York, and Visiting Nurse Service of New York. (2002). The Wide Circle of Caregiving: Key Findings from a National Survey: Long-Term Care from the Caregiver’s Perspective. Menlo Park: Kaiser Family Foundation.

Thompson, L. (2004). Long-term Care: Support for Family Caregivers [Issue Brief].Washington, DC: Long-Term Care Financing Project, Georgetown University.

U.S. Department of Health and Human Services and Assistant Secretary for Planning and Evaluation. (2003). The Future Supply of Long-term Care Workers in Relation to the Aging Baby Boom Generation. Report to Congress. Washington, DC: Author.

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