For Professionals

With Far Fewer Benefits I Could've Kept Him Home

Dave has Huntington's Disease, which doesn't require "skilled medical care." It does require over $600.00 monthly in medication, food via the feeding tube, and help to bathe or dress.

Online Resources for More Information

Online Resources for More Information

Family Caregiver Alliance
National Center on Caregiving

Offers comprehensive caregiving information and advice, fact sheets, reports and studies, discussion groups and newsletters for caregivers, practitioners, policymakers and researchers. In addition, a state-by-state resource guide offers a searchable database of publicly-funded caregiver support programs.
Phone: 800-445-8106
Website: caregiver.org

Caregivers Count Too! Section 1: Getting Started

What Is the Caregivers Count Tool Toolkit?

This toolkit is a step-by-step resource filled with practical information and resources. It’s designed for program administrators and practitioners* to:

A Physician's View of Caregiver Health - Archive

A legislative hearing before the Senate Subcommittee on Aging and Long-Term Care in Sacramento focused attention on strategies to support family caregivers in California. The session looked at future and current caregiver needs and the unique demographic trends that impact this important public health issue. Dr. Moira Fordyce was a key spokesperson. Below is her testimony.

Senator Alquist (now retired) and Members of the Subcommittee:

Caregivers Count Too! Toolkit

An Online Toolkit to Help Practicioners Assess the Needs of Family Caregivers

Now more than ever, involving family caregivers is a necessary part of working with older people and adults with disabilities in all practice settings. As our population ages, more people with chronic and disabling conditions are choosing to live at home or in the community, launching their family members and close friends into action as caregivers.

The toolkit is broken up into sections . . .

National Consensus Report on Caregiver Assessment: Volumes I & ll

This groundbreaking two-part report from the National Center on Caregiving at Family Caregiver Alliance calls for significant improvement in health care and long-term care that relies too much on families without recognizing and assessing family caregivers' own support and health needs. Caregiver assessment is an essential component of comprehensive care for frail elders and adults with chronic or disabling conditions, particularly dementia.

Caregivers Count Too! Section 2: Why Assess the Needs of Family Caregivers?

Assessment builds caregiver morale and capacity:

  • Caregivers who have their needs assessed feel acknowledged, valued, and better understood by practitioners.
  • Caregivers gain a better grasp of their role and the abilities required to carry out tasks.
  • If the physical, emotional and financial strains on family caregivers become too great, care in the home may be seriously jeopardized.

It’s the key to care planning:

Support for Working Family Caregivers: Paid Leave Policies in California and Beyond

Family Caregiver Alliance’s National Center on Caregiving has released a new Issue Brief on the value of paid family and medical leave to both working families and employers, and describes why this issue is taking hold in the states. The brief describes the development and initial implementation of California’s landmark paid leave law, and its usage by workers who are juggling the competing demands of jobs and caring for family members with chronic or debilitating health conditions. The brief also summarizes the progress towards similar statutes at the federal and state levels.

National Consensus Project for Caregiver Assessment

National Consensus Project for Caregiver Assessment: Translating Research into Policy and Practice

Routinely, people with chronic or disabling conditions are assessed by professionals in medical, health and social service settings to determine what services or treatments they need. Family caregivers, however, have not had the same experience.

National Consensus Development Conference for Caregiver Assessment

©2005 Family Caregiver Alliance

The National Consensus Development Conference for Caregiver Assessment was convened by the National Center on Caregiving at Family Caregiver Alliance September 7–9, 2005 in San Francisco. The event was an intense and productive two days for the invitees, all key leaders in the field, with multi-disciplinary perspectives on the issues.

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