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Family Caregiver Services by State

I am New to Caregiving Where Do I Start?

Serves older adults, adults with disabilities, family caregivers, and residents in long-term care facilities throughout the State.

Care Recipient Eligibility

Older adults, adults with disabilities, family caregivers, and residents in long-term care facilities

Caregiver Eligibility

Older adults, adults with disabilities, family caregivers, and residents in long-term care facilities

Contact Information

1-800-510-2020

ARCH National Respite Network

http://www.respitelocator.org

Online Respite Locator is a service to help families and professionals locate respite services in their community from a database of nearly 3,000 members.

Care Recipient Eligibility

Anyone

Caregiver Eligibility

Anyone

Contact Information

919-490-5577

California Area Agencies on Aging (AAA)

https://www.aging.ca.gov/ProgramsProviders/AAA/AAA_Listing.aspx

AAAs offer aging services, including:

– Information and Assistance
– Care Management
– Nutrition Services (i.e., Meals on Wheels)
– Legal Assistance
– Services for family caregivers through the Family Caregiver Support Program (FCSP)

Care Recipient Eligibility

Anyone

Caregiver Eligibility

Anyone

Contact Information

To be connected to your local AAA within California, call: (800) 510-2020

California’s Caregiver Resource Centers

https://www.caregivercalifornia.org/

The 11 nonprofit California Caregiver Resource Centers (CRCs), serve family caregivers of adults affected by chronic and debilitating health conditions, degenerative diseases, or traumatic brain injury.

Care Recipient Eligibility

Families and caregivers of adults affected by chronic and debilitating health conditions including dementia, Alzheimer’s disease, cerebrovascular diseases (such as stroke or aneurysms), degenerative diseases such as Parkinson’s, Huntington’s and multiple sclerosis, or traumatic brain injury (TBI).

Caregiver Eligibility

Families and caregivers of adults affected by chronic and debilitating health conditions including dementia, Alzheimer’s disease, cerebrovascular diseases (such as stroke or aneurysms), degenerative diseases such as Parkinson’s, Huntington’s and multiple sclerosis, or traumatic brain injury (TBI).

The Eldercare Locator is a nationwide service that connects older Americans and their caregivers with trustworthy local support resources. Elder Locator links those who need assistance with state and local agencies on aging, as well as community-based organizations that serve older adults and their caregivers with services such as meals, home care, transportation, caregiver training and education, or a well-deserved break from caregiving responsibilities

Care Recipient Eligibility

Older adults and caregivers.

Caregiver Eligibility

Older adults and caregivers.

Contact Information

1-800-677-1116

Family Caregiver Alliance (FCA)

https://www.caregiver.org

FCA support and assists families and caregivers through education, advocacy and services. In addition to providing training to technical assistance to California’s Caregiver Resource Centers, FCA hosts the National Center on Caregiving (NCC). The NCC serves as a central source of information on caregiving and long-term care issues and works to advance policies and programs for caregivers in every state in the country.

CareNav is a simple, user-friendly tool designed to help families navigate the complexities of the caregiving journey. Register online or call us toll-free at 800.445.8106.

www.caregiver.org/connecting-caregivers/fca-carenav/

Care Recipient Eligibility

Anyone

Caregiver Eligibility

Anyone

Contact Information

(800) 445-8106 Available weekdays 9:00am - 5:00pm (Pacific Time)

In-Home Supportive Services (IHSS)

http://www.cdss.ca.gov/In-Home-Supportive-Services

Government program assists older persons and adults with disabilities remain in their own homes by helping to pay for services such as:
– Housecleaning
– Meal preparation
– Laundry
– Grocery shopping
– Personal care services
– Accompaniment to medical appointments
– Protective supervision for the mentally impaired

*IHSS allows care receivers and their families to choose who to hire to provide services, including relatives or friends.

Care Recipient Eligibility

___

Caregiver Eligibility

___

Contact Information

See website for local contact information by county

Can I Get Help to Pay for Caregiving?

In-Home Supportive Services (IHSS)

http://www.cdss.ca.gov/In-Home-Supportive-Services

Government program assists older persons and adults with disabilities remain in their own homes by helping to pay for services such as:
– Housecleaning
– Meal preparation
– Laundry
– Grocery shopping
– Personal care services
– Accompaniment to medical appointments
– Protective supervision for the mentally impaired

*IHSS allows care receivers and their families to choose who to hire to provide services, including relatives or friends.

Care Recipient Eligibility

___

Caregiver Eligibility

___

Contact Information

See website for local contact information by county

The cost of that care varies based on care setting, geographic location of care and level of care required, among other things. The Genworth’s Cost of Care Survey tool can be used by you and your family to calculate the estimated cost of long term care in your city or State.

Information about eligibility and requirements for home and community-based services by state.

Government Benefits and General Information

Benefits.gov

http://www.benefits.gov/

Benefits.gov (formerly GovBenefits.gov) was launched in an effort to provide citizens with easy, online access to government benefit and assistance programs. Eight years after its initial launch, GovBenefits.gov underwent a major redesign and became Benefits.gov. However, the program’s mission remains the same: reduce the expense and difficulty of interacting with the government while increasing citizen access to government benefit information.

Care Recipient Eligibility

N/A

Caregiver Eligibility

N/A

Contact Information

Benefits.gov is unable to respond to specific scenarios or provide personalized advice. A number of Other Resources and Frequently Asked Questions are available to help answer any questions you may have about government programs, benefits, and services.

For additional government information, you may call USA.gov's National Contact Center at 1-800-FED-INFO (1-800-333-4636), Monday through Friday, 8 a.m. to 8 p.m. Eastern Time, to speak to an information specialist.

Benefits.gov – California

https://www.benefits.gov/categories

Benefits.gov (formerly GovBenefits.gov) was launched in an effort to provide citizens with easy, online access to government benefit and assistance programs. Eight years after its initial launch, GovBenefits.gov underwent a major redesign and became Benefits.gov. However, the program’s mission remains the same: reduce the expense and difficulty of interacting with the government while increasing citizen access to government benefit information.

Care Recipient Eligibility

N/A

Caregiver Eligibility

N/A

Contact Information

Benefits.gov is unable to respond to specific scenarios or provide personalized advice. A number of Other Resources and Frequently Asked Questions are available to help answer any questions you may have about government programs, benefits, and services.

For additional government information, you may call USA.gov's National Contact Center at 1-800-FED-INFO (1-800-333-4636), Monday through Friday, 8 a.m. to 8 p.m. Eastern Time, to speak to an information specialist.

California County-Specific Veterans Service Officer Contacts (VSO)

http://www.cacvso.org/

The California Association of County Veterans Service Officers (CACVSO) is an organization of professional veterans advocates.

Contact Information

(800) 952-5626

California Department of Veteran’s Affairs (VA)

https://www.calvet.ca.gov/

Provides California’s aged or disabled veterans with rehabilitative, residential and medical care and services. The VA also helps veterans and their families to present claims for veterans’ benefits to the federal government and offers veterans low-cost loans to acquire farms and homes.

Care Recipient Eligibility

Family members of a veteran

Caregiver Eligibility

Family members of a veteran

Contact Information

(800) 952-5626 (Within California) (800) 221-8998 (Outside California) (800) 324-5966 (TDD)

FCSP services for family caregivers are provided through local area agencies on aging (AAAs) and include:
– Information
– Assistance
– Individual counseling, support groups and caregiver training
– Respite care
– Limited supplemental services, such as transportation and home modifications

Care Recipient Eligibility

- Anyone age 18 or older caring for someone who meets care receiver eligibility Special Populations: - Adults age 55 or older who are caring for anyone (that is not their child) over 18 years old with developmental disabilities - Grandparents or other relatives age 55 or older caring for children (age 18 and under)

Caregiver Eligibility

- Anyone age 18 or older caring for someone who meets care receiver eligibility Special Populations: - Adults age 55 or older who are caring for anyone (that is not their child) over 18 years old with developmental disabilities - Grandparents or other relatives age 55 or older caring for children (age 18 and under)

Contact Information

To be connected to your local AAA within California, call: (800) 510-2020

California Health Advocates – Senior Medicare Patrol

https://cahealthadvocates.org/

Medicare is a government health insurance program for adults age 65 and older, some people under age 65 with disabilities, and people with End-Stage Renal disease. California Health Advocates provide accurate, unbiased information about Medicare benefits, coverage options and long-term care for Californians.

Care Recipient Eligibility

__

Caregiver Eligibility

__

Contact Information

Phone: 916-465-8104 (800) MEDICAR (800) 633-4227 In California, call: (800) 434-0222

California Health Insurance Counseling and Advocacy Program (HICAP)

http://www.cahealthadvocates.org/HICAP/

Assists individuals and families with eligibility questions and problems related to Medicare, prescription drug coverage under Medicare Part D, and other health care issues, including managed care, long-term care planning and health insurance. Community education and individual counseling are available in all California counties.

Care Recipient Eligibility

Anyone

Caregiver Eligibility

Anyone

Contact Information

(800) 434-0222

Comprehensive Paid Family Leave Program

http://edd.ca.gov/disability/Paid_Family_Leave.htm

Provides California employees up to six weeks of paid leave in order to care for a seriously ill family member or to bond with a new child. Workers receive 60% or 70% depending on income, with lowest wage workers receiving 70% of normal wages.

Care Recipient Eligibility

Must have been a full-time or part-time worker who paid State Disability Insurance (SDI) taxes

Caregiver Eligibility

Must have been a full-time or part-time worker who paid State Disability Insurance (SDI) taxes

Contact Information

California Employment Development Department: (877) 238-4373

Del Norte and San Diego Aging and Disability Resource Centers (ADRCs)

https://www.aging.ca.gov/Providers_and_Partners/Aging_and_Disability_Resource_Connection/

There are two ADRCs that provide information and access to long-term care support and services: (1) Humboldt and Del Norte Counties and (2) San Diego County.

Care Recipient Eligibility

Anyone caring for someone who meets care recipient eligibility.

Caregiver Eligibility

Anyone caring for someone who meets care recipient eligibility.

Contact Information

Del Norte: (707) 464-7876 Humboldt: (707) 442-9591 or (800) 408-4636 San Diego: From within San Diego, call: (800) 510-2020 From outside San Diego, call: (800) 339-4661

Health Consumer Alliance (HCA)

http://www.healthconsumer.org

Health consumer centers in thirteen California counties provide information about health care coverage and services, including Medi-Cal, and help low-income people access health care in California. HCA is a partnership of consumer assistance programs operated by community-based legal services organizations.

Care Recipient Eligibility

Anyone

Caregiver Eligibility

Anyone

Contact Information

See website for local contact info.

In-Home Supportive Services (IHSS)

http://www.cdss.ca.gov/In-Home-Supportive-Services

Government program assists older persons and adults with disabilities remain in their own homes by helping to pay for services such as:
– Housecleaning
– Meal preparation
– Laundry
– Grocery shopping
– Personal care services
– Accompaniment to medical appointments
– Protective supervision for the mentally impaired

*IHSS allows care receivers and their families to choose who to hire to provide services, including relatives or friends.

Care Recipient Eligibility

___

Caregiver Eligibility

___

Contact Information

See website for local contact information by county

Medi-Cal is California’s Medicaid program – health insurance for people with limited income and resources. It pays for a variety of medical services, including in-home care or nursing home care for low-income people.

Care Recipient Eligibility

___

Caregiver Eligibility

___

Contact Information

See website for local contact info.

Explore every state’s Medicaid and CHIP program to learn about coverage for low-income adults, Medicaid/CHIP eligibility, enrollment and renewal processes and systems on the State Profiles map – by clicking on the map or select from drop down to see each state’s Medicaid and CHIP profile. Scroll down to the bottom page of the State profile to check eligibility requirements, enrollment process, etc.

Contact Information

Toll-Free: 877-267-2323

Information about eligibility and requirements for home and community-based services by state.

National Center on Caregiving (NCC) at Family Caregiver Alliance (FCA) – California

https://www.caregiver.org/national-center-caregiving

Offers a national telephone hotline, online resources and printed publications which serve as a central source of information and assistance to family caregivers in every state.

Care Recipient Eligibility

Anyone

Caregiver Eligibility

Anyone

Contact Information

(800) 445-8106 Available weekdays 9am - 5pm (Pacific Time).

National Resource Center on Native American Aging (NRCNAA)

https://www.nrcnaa.org/

The NRCNAA serves the elderly Native American population of the U.S. The NRCAA assists in developing community-based solutions through education, training, and technical assistance to improve the quality of life and delivery of related support services to the Native aging population.

Through the Native Elder Service Locator, you can use the interactive map to locate tribal elderly services in your state.

Contact Information

(800) 896-7628

SAMHSA’s National Helpline

https://www.samhsa.gov/find-help/national-helpline

The Substance Abuse & Mental Health Services Administration (SAMHSA) National Helpline, 1-800-662-HELP (4357) (also known as the Treatment Referral Routing Service), is a confidential, free, 24-hour-a-day, 365-day-a-year, information service, in English and Spanish, for individuals and family members facing mental and/or substance use disorders. This service provides referrals to local treatment facilities, support groups, and community-based organizations.

Also visit the online treatment locator to find help near you.

Contact Information

1-800-662-4357

Can I Get Help While Living In My Home?

In California, over 300 ADHCs are licensed by the state to operate community-based day health care programs for those at risk of being placed in a nursing home. They provide a variety of health, therapeutic, and social services including:
– Medical services
– Nursing services
– Physical, occupational and speech therapy
– Psychiatric and psychological services

Care Recipient Eligibility

___

Caregiver Eligibility

___

Contact Information

To be connected to your local Area Agency on Aging within California, call (800) 510-2020 Outside California, call the toll-free Eldercare Locator service at: (800) 677-1116 Eldercare Locator hotline is available weekdays, 9am-8pm (Eastern Time). Spanish-speaking information specialists are available.

California Association of Adult Day Services (CAADS)

http://www.caads.org

Online directory of CAADS member agencies including: Adult Day Programs and Adult Day Care Centers; Adult Day Health Care Centers (ADHC); and designated Alzheimer’s Day Care Resource Centers (ADCRC). Each day center develops its own array of services, but all programs offer age appropriate therapeutic activities, nutritious meals, social services and an individualized plan of care.

Care Recipient Eligibility

___

Caregiver Eligibility

___

Contact Information

(916) 552-7400

California County-Specific Veterans Service Officer Contacts (VSO)

http://www.cacvso.org/

The California Association of County Veterans Service Officers (CACVSO) is an organization of professional veterans advocates.

Contact Information

(800) 952-5626

California Foundation for Independent Living Centers (CILC)

http://www.cfilc.org

A network of non-profit, non-residential, community-based centers, run and controlled by persons with disabilities that offer:
– Information and Referral
– Peer counseling
– Care Management
– Independent living skills training
– Individual and systems change advocacy
– Benefits counseling
– Employment readiness training
– Housing referrals
– Assistive technology services
– Legal aid

Care Recipient Eligibility

___

Caregiver Eligibility

___

Contact Information

Voice: (916) 325-1690 TTY: (916) 325-1695

Comprehensive Paid Family Leave Program

http://edd.ca.gov/disability/Paid_Family_Leave.htm

Provides California employees up to six weeks of paid leave in order to care for a seriously ill family member or to bond with a new child. Workers receive 60% or 70% depending on income, with lowest wage workers receiving 70% of normal wages.

Care Recipient Eligibility

Must have been a full-time or part-time worker who paid State Disability Insurance (SDI) taxes

Caregiver Eligibility

Must have been a full-time or part-time worker who paid State Disability Insurance (SDI) taxes

Contact Information

California Employment Development Department: (877) 238-4373

In-Home Supportive Services (IHSS)

http://www.cdss.ca.gov/In-Home-Supportive-Services

Government program assists older persons and adults with disabilities remain in their own homes by helping to pay for services such as:
– Housecleaning
– Meal preparation
– Laundry
– Grocery shopping
– Personal care services
– Accompaniment to medical appointments
– Protective supervision for the mentally impaired

*IHSS allows care receivers and their families to choose who to hire to provide services, including relatives or friends.

Care Recipient Eligibility

___

Caregiver Eligibility

___

Contact Information

See website for local contact information by county

Multipurpose Senior Service Program (MSSP)

http://www.aging.ca.gov/ProgramsProviders/MSSP/

Operates 41 sites in California that provide comprehensive care management and other services to assist frail elderly persons remain at home as long as possible. Services include:
– Adult day care
– Housing assistance
– Chore and personal care assistance
– Protective supervision
– Respite
– Meal services
– Transportation

Care Recipient Eligibility

___

Caregiver Eligibility

___

Contact Information

To be connected to your local AAA within California, call: (800) 510-2020

Programs of All-Inclusive Care for the Elderly Association (PACE) – California

http://www.dhcs.ca.gov/services/ltc/Pages/ProgramofAll-InclusiveCarefortheElderly.aspx

Four PACE programs in California coordinate and provide the entire continuum of care and services to their older enrollees with chronic care needs to enable them to continue living safely in the community as long as possible. Care and services include:
– Adult day health care
– Medical care
– Home health care and personal care
– All necessary prescription drugs
– Social services
– Respite
– Hospital and nursing home care when necessary

Care Recipient Eligibility

___

Caregiver Eligibility

___

Contact Information

California Department of Health Care Services - PACE Unit: (916) 713- 8444​

Can I Get Help with Residential Care (Assisted Living, Nursing Home, Hospice?)

California Advocates for Nursing Home Reform (CANHR)

http://www.canhr.org/

– Educates consumers about issues related to long-term care.
– Provides information about Medi-Cal, how to file complaints against nursing homes, elder abuse and neglect, financial abuse and estate planning.
– Maintains a comprehensive list of nursing facilities throughout California, including information about services provided and complaints.
– Provides pre-placement counseling and information about California nursing homes and assisted living facilities.
– Provides referrals to attorneys who specialize in elder law and long-term care issues, including estate planning (especially as relates to Medi-Cal), financial abuse, and neglect and abuse in nursing home and long-term care facilities.

Care Recipient Eligibility

Anyone

Caregiver Eligibility

Anyone

Contact Information

(800) 474-1116 (415) 974-5171 (415) 777-2904 (fax) canhrmail@canhr.org

Hospice Foundation of America – California

http://www.hospicefoundation.org

Provides information about end-of-life care. Its online Find a Hospice lists member hospice and palliative care programs for individuals who have advanced illness or have been considered terminally ill by a physician by California county.

You can click on the Hospice Directory to find a listing of state hospice organizations that can answer questions about services and options available in your state.

Care Recipient Eligibility

Anyone

Caregiver Eligibility

Anyone

Contact Information

California Hospice and Palliative Care Organization: (916) 925-3770 (888) 252-1010 or Hospice Foundation of America: (202) 457-5811 or (800) 854-3402

LeadingAge California

https://www.leadingageca.org/

Offers an online Facility Search of over 400 nonprofit providers of aging services including; home and community-based care programs, continuing care retirement communities, assisted living facilities and skilled-nursing. Also provides tips and suggested questions to ask when touring a facility.

Care Recipient Eligibility

Anyone

Caregiver Eligibility

Anyone

Contact Information

(916) 392-5111

Caregiver Policies and Data

Caregiving Across the States: 50 State Profiles – California

https://www.caregiver.org/uploads/2023/08/California-2023-1-1.pdf