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Family Caregiver Services by State

I am New to Caregiving Where Do I Start?

ARCH National Respite Network

http://www.respitelocator.org

Online Respite Locator is a service to help families and professionals locate respite services in their community from a database of nearly 3,000 members.

Care Recipient Eligibility

Anyone

Caregiver Eligibility

Anyone

Contact Information

919-490-5577

The Eldercare Locator is a nationwide service that connects older Americans and their caregivers with trustworthy local support resources. Elder Locator links those who need assistance with state and local agencies on aging, as well as community-based organizations that serve older adults and their caregivers with services such as meals, home care, transportation, caregiver training and education, or a well-deserved break from caregiving responsibilities

Care Recipient Eligibility

Older adults and caregivers.

Caregiver Eligibility

Older adults and caregivers.

Contact Information

1-800-677-1116

Family Caregiver Alliance (FCA)

https://www.caregiver.org

FCA support and assists families and caregivers through education, advocacy and services. In addition to providing training to technical assistance to California’s Caregiver Resource Centers, FCA hosts the National Center on Caregiving (NCC). The NCC serves as a central source of information on caregiving and long-term care issues and works to advance policies and programs for caregivers in every state in the country.

CareNav is a simple, user-friendly tool designed to help families navigate the complexities of the caregiving journey. Register online or call us toll-free at 800.445.8106.

www.caregiver.org/connecting-caregivers/fca-carenav/

Care Recipient Eligibility

Anyone

Caregiver Eligibility

Anyone

Contact Information

(800) 445-8106 Available weekdays 9:00am - 5:00pm (Pacific Time)

Area Agencies have the primary task of planning and coordinating services and programs for older people in their respective areas. AAAs offer aging services, including:
– Information and assistance
– Care management
– Nutrition services (i.e., Meals on Wheels)
– Legal assistance
– Services for family caregivers through the Family Caregiver Support Program

Check out the website to locate your local Area Agency on Aging and its contact information.

Care Recipient Eligibility

Anyone

Caregiver Eligibility

Anyone

Contact Information

Senior Helpline Within Illinois, call: (800) 252-8966 TTY:(888) 206-1327 Outside Illinois, call: (217) 524-6911

Illinois Department on Aging

https://ilaging.illinois.gov/programs.html

The mission of the Illinois Department on Aging is to serve and advocate for older Illinoisans and their caregivers by administering quality and culturally appropriate programs that promote partnerships and encourage independence, dignity, and quality of life.

Contact Information

1-800-252-8966

Can I Get Help to Pay for Caregiving?

The cost of that care varies based on care setting, geographic location of care and level of care required, among other things. The Genworth’s Cost of Care Survey tool can be used by you and your family to calculate the estimated cost of long term care in your city or State.

Information about eligibility and requirements for home and community-based services by state.

Government Benefits and General Information

Benefits.gov

http://www.benefits.gov/

Benefits.gov (formerly GovBenefits.gov) was launched in an effort to provide citizens with easy, online access to government benefit and assistance programs. Eight years after its initial launch, GovBenefits.gov underwent a major redesign and became Benefits.gov. However, the program’s mission remains the same: reduce the expense and difficulty of interacting with the government while increasing citizen access to government benefit information.

Care Recipient Eligibility

N/A

Caregiver Eligibility

N/A

Contact Information

Benefits.gov is unable to respond to specific scenarios or provide personalized advice. A number of Other Resources and Frequently Asked Questions are available to help answer any questions you may have about government programs, benefits, and services.

For additional government information, you may call USA.gov's National Contact Center at 1-800-FED-INFO (1-800-333-4636), Monday through Friday, 8 a.m. to 8 p.m. Eastern Time, to speak to an information specialist.

Benefits.gov – Illinois

https://www.benefits.gov/categories

Benefits.gov (formerly GovBenefits.gov) was launched in an effort to provide citizens with easy, online access to government benefit and assistance programs. Eight years after its initial launch, GovBenefits.gov underwent a major redesign and became Benefits.gov. However, the program’s mission remains the same: reduce the expense and difficulty of interacting with the government while increasing citizen access to government benefit information.

Care Recipient Eligibility

N/A

Caregiver Eligibility

N/A

Contact Information

Benefits.gov is unable to respond to specific scenarios or provide personalized advice. A number of Other Resources and Frequently Asked Questions are available to help answer any questions you may have about government programs, benefits, and services.

For additional government information, you may call USA.gov's National Contact Center at 1-800-FED-INFO (1-800-333-4636), Monday through Friday, 8 a.m. to 8 p.m. Eastern Time, to speak to an information specialist.

Equip for Equality

http://www.equipforequality.org/

Non-profit organization advocates on behalf of individuals with disabilities by providing services including:
– Information and referral
– Legal services (limited representation)
– Education/Self-advocacy training

Care Recipient Eligibility

Anyone

Caregiver Eligibility

Anyone

Contact Information

Within Illinois, call: (800) 537-2632 TTY: (800) 610-2779 Outside Illinois, call: (312) 341-0022

Illinois County-Specific Veterans Service Officer (VSO)

http://www2.illinois.gov/veterans/Pages/ServiceOffices.aspx

Veteran Service Officers (VSOs) are fellow veterans who are experts on federal, state and local veteran resources assists veterans in navigating the complex web of services and benefits available.

Check out the VSO Directory to connect with a VSO.

Contact Information

(800) 437-9824

Illinois Department of Veterans Affairs

http://www.state.il.us/agency/dva/

Provides aged or disabled veterans with rehabilitative, residential and medical care and services. Also helps veterans and their families to present claims for veterans’ benefits to the federal government.

Care Recipient Eligibility

Family members of a veteran

Caregiver Eligibility

Family members of a veteran

Contact Information

Within Illinois, call: (800) 437-9824 Outside Illinois, call: (217) 782-6641 TTY: (217) 524-4645

Illinois Family Caregiver Support Program

https://ilaging.illinois.gov/programs/caregiver.html

FCSP services for family caregivers are provided through local Caregiver Resource Centers (CRCs) and include:
– Information
– Assistance
– Individual counseling, support groups and caregiver training
– Respite care
– Limited supplemental services, such as transportation and home modifications

Care Recipient Eligibility

- Adults age 18 and older caring for someone who meets care receiver eligibility Special Populations: - Adults age 55 or older who are caring for anyone (that is not their child) over 18 years old with developmental disabilities - Grandparents or other relatives age 55 or older caring for children (age 18 and under)

Caregiver Eligibility

- Adults age 18 and older caring for someone who meets care receiver eligibility Special Populations: - Adults age 55 or older who are caring for anyone (that is not their child) over 18 years old with developmental disabilities - Grandparents or other relatives age 55 or older caring for children (age 18 and under)

Contact Information

Senior Helpline Within Illinois: (800) 252-8966

TTY:(888) 206-1327

Also, see website for local numbers

Medicaid is a health insurance for people with limited income and resources. It pays for a variety of medical services, including in-home care or nursing home care, depending on eligibility.

Care Recipient Eligibility

___

Caregiver Eligibility

___

Contact Information

(217) 782-1200 TTY: (800) 526-5812

Illinois Respite Coalition

http://www.illinoisrespitecoalition.org/

The Illinois Respite Coalition (IRC) is a not-for-profit organization of caregivers and respite providers dedicated to advocating support for families by ensuring access to quality respite services for the residents of Illinois.

The IRC is able to assist caregivers by connecting them to resources in their area, provide training on respite topics, and have funding available for emergency respite.

Caregiver Eligibility

Anyone caring for someone who meets care receiver eligibility criteria

Contact Information

Toll-Free Statewide Respite Phone: 866-ILL-RESP or 866-455-7377

Illinois Senior Health Insurance Program (SHIP)

https://ilaging.illinois.gov/ship.html

Assists individuals and families with eligibility questions and problems related to Medicare, including prescription drug coverage under Medicare Part D, managed care, long-term care planning, health insurance and other health care issues.

Care Recipient Eligibility

Anyone

Caregiver Eligibility

Anyone

Contact Information

(800) 252-8966; 711 (TRS) Or email AGING.SHIP@ILLINOIS.GOV.

Explore every state’s Medicaid and CHIP program to learn about coverage for low-income adults, Medicaid/CHIP eligibility, enrollment and renewal processes and systems on the State Profiles map – by clicking on the map or select from drop down to see each state’s Medicaid and CHIP profile. Scroll down to the bottom page of the State profile to check eligibility requirements, enrollment process, etc.

Contact Information

Toll-Free: 877-267-2323

Information about eligibility and requirements for home and community-based services by state.

National Resource Center on Native American Aging (NRCNAA)

https://www.nrcnaa.org/

The NRCNAA serves the elderly Native American population of the U.S. The NRCAA assists in developing community-based solutions through education, training, and technical assistance to improve the quality of life and delivery of related support services to the Native aging population.

Through the Native Elder Service Locator, you can use the interactive map to locate tribal elderly services in your state.

Contact Information

(800) 896-7628

SAMHSA’s National Helpline

https://www.samhsa.gov/find-help/national-helpline

The Substance Abuse & Mental Health Services Administration (SAMHSA) National Helpline, 1-800-662-HELP (4357) (also known as the Treatment Referral Routing Service), is a confidential, free, 24-hour-a-day, 365-day-a-year, information service, in English and Spanish, for individuals and family members facing mental and/or substance use disorders. This service provides referrals to local treatment facilities, support groups, and community-based organizations.

Also visit the online treatment locator to find help near you.

Contact Information

1-800-662-4357

Can I Get Help While Living In My Home?

Community Care Program (CCP)

https://ilaging.illinois.gov/programs/ccp.html

Government program assists low income older adults who require help with activities of daily living by helping to pay for home and community based services including:
– Care management
– In-home care
– Adult day are
– Transportation
– Home delivered meals

Care Recipient Eligibility

___

Caregiver Eligibility

___

Contact Information

Senior Helpline Within Illinois, call: (800) 252-8966 TTY:(888) 206-1327 Outside Illinois, call: (217) 524-6911

Illinois Adult Day Service Association (IADSA)

http://www.iadsa.com

Association of adult day care providers offers an Online Directory that allows consumers to locate adult day care providers in their community. Database consists of member providers of IADSA.

Care Recipient Eligibility

Anyone

Caregiver Eligibility

Anyone

Contact Information

(773) 202-4130

Area Agencies have the primary task of planning and coordinating services and programs for older people in their respective areas. AAAs offer aging services, including:
– Information and assistance
– Care management
– Nutrition services (i.e., Meals on Wheels)
– Legal assistance
– Services for family caregivers through the Family Caregiver Support Program

Check out the website to locate your local Area Agency on Aging and its contact information.

Care Recipient Eligibility

Anyone

Caregiver Eligibility

Anyone

Contact Information

Senior Helpline Within Illinois, call: (800) 252-8966 TTY:(888) 206-1327 Outside Illinois, call: (217) 524-6911

Government program assists Medicaid eligible older adults who require nursing level of care remain in the community by helping to pay for home and community based services including:
– In-home care
– Adult day are
– Emergency home response

Care Recipient Eligibility

___

Caregiver Eligibility

___

Contact Information

(800) 843-6154 TTY: (800) 447-6404

Illinois HomeCare and Hospice Council (IHHC)

http://www.ilhomecare.org/

Association of in-home care providers offers online directory that allows consumers to locate in-home care providers in their community. Database consists of member providers of IHCC.

Care Recipient Eligibility

Anyone

Caregiver Eligibility

Anyone

Contact Information

(217) 753-4422

Illinois Hospice and Palliative Care Organization (ILHPCO)

https://il-hpco.org/

Provides information and referral services for hospice and palliative care in Illinois. Its website provides a search tool that allows user to locate hospice programs in their communities.

Care Recipient Eligibility

Anyone

Caregiver Eligibility

Anyone

Contact Information

(847) 441-7200

Illinois Network of Centers for Independent Living (INCIL)

http://www.incil.org/

A network of non-profit, non-residential, community-based centers, run and controlled by persons with disabilities that offer:
– Information and referral
– Peer counseling
– Care management
– Independent living skills training
– Individual and systems change advocacy
– Benefits counseling
– Employment readiness training
– Housing referrals
– Assistive technology services
– Legal aid

Care Recipient Eligibility

___

Caregiver Eligibility

___

Contact Information

Within Illinois, call: (800) 587-1227 (Voice/TTY) Outside Illinois, call: (217) 525-1308 (Voice/TTY)

Persons with Brain Injury (BI) Waiver

https://hfs.illinois.gov/medicalclients/hcbs/bi.html

Government program assists Medicaid eligible individuals who have a diagnosis of traumatic brain injury (TBI) who require nursing level of care remain independent in their own homes by helping to pay for home and community based services including:
– In-home care
– Adult day are
– Respite
– Skilled nursing services
– Physical, occupational and speech therapies
– Personal emergency response system
– Home adaptations
– Specialized medical equipment and supplies
– Home delivered meals
– Day habilitation
– Prevocational services

Care Recipient Eligibility

___

Caregiver Eligibility

___

Contact Information

877-581-3690 TTY: (800) 447-6404

Persons with Disabilities (PD) Waiver

https://hfs.illinois.gov/medicalclients/hcbs/disablities.html

Government program assists Medicaid eligible individuals age 59 or younger who require nursing level of care remain independent in their own homes by helping to pay for home and community based services including:
– In-home care
– Adult day are
– Respite
– Skilled nursing services
– Physical, occupational and speech therapies
– Personal emergency response system
– Home adaptations
– Specialized medical equipment and supplies
– Home delivered meals

Care Recipient Eligibility

___

Caregiver Eligibility

___

Contact Information

877-581-3690 TTY: (800) 447-6404

Can I Get Help with Residential Care (Assisted Living, Nursing Home, Hospice?)

Illinois law requires that all person’s aged 60 and over who are seeking admission to a long-term care facility be informed of all care options prior to admission, regardless of the individual’s income, assets or funding source. Care Coordinators conduct the screenings primarily in hospitals immediately prior to patient discharge. The screening process gives seniors and their families the opportunity to learn and ask questions about home and community-based services and long-term care services.

Check out the Choices for Care brochure for more information.

Care Recipient Eligibility

Anyone

Caregiver Eligibility

Anyone

Contact Information

Senior Helpline Within Illinois, call: (800) 252-8966 TTY:(888) 206-1327 Outside Illinois, call: (217) 524-6911

Illinois Council on Long Term Care

http://www.nursinghome.org/

Association of nursing homes and rehabilitation centers in Illinois. Its website offers a search tool which allows the user to search for nursing homes and rehabilitation centers by city, county or zip code.

Care Recipient Eligibility

Anyone

Caregiver Eligibility

Anyone

Contact Information

(773) 478-6613

Illinois Hospice and Palliative Care Organization (ILHPCO)

https://il-hpco.org/

Provides information and referral services for hospice and palliative care in Illinois. Its website provides a search tool that allows user to locate hospice programs in their communities.

Care Recipient Eligibility

Anyone

Caregiver Eligibility

Anyone

Contact Information

(847) 441-7200

Nursing Homes in Illinois – Illinois Department of Public Health

http://www.idph.state.il.us/healthca/nursinghometestjava.htm

Government website provides information on nursing homes in Illinois. Its website offers a search tool which allows the user to search for licensed nursing homes by city, county or zip code and facility name.

Care Recipient Eligibility

Anyone

Caregiver Eligibility

Anyone

Contact Information

Nursing Home Hotline (800) 252-4343

Supportive Living Facilities (SLFs) Waiver

http://www2.illinois.gov/hfs/MedicalPrograms/HCBS/Pages/slf.aspx

Government program assists low income adults living in assisted living facilities delay placement into a nursing home by providing the following services:
– In-home care
– Emergency home response
– Social/recreational programming
– Transportation
– Supplemental services

Care Recipient Eligibility

___

Caregiver Eligibility

___

Contact Information

(800) 843-6154 TTY: (800) 447-6404

Caregiver Policies and Data

Caregiving Across the States: 50 State Profiles – Illinois

https://www.caregiver.org/uploads/2023/08/Illinois-2023-1-1.pdf