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Family Caregiver Services by State

I am New to Caregiving Where Do I Start?

ARCH National Respite Network

http://www.respitelocator.org

Online Respite Locator is a service to help families and professionals locate respite services in their community from a database of nearly 3,000 members.

Care Recipient Eligibility

Anyone

Caregiver Eligibility

Anyone

Contact Information

919-490-5577

The Eldercare Locator is a nationwide service that connects older Americans and their caregivers with trustworthy local support resources. Elder Locator links those who need assistance with state and local agencies on aging, as well as community-based organizations that serve older adults and their caregivers with services such as meals, home care, transportation, caregiver training and education, or a well-deserved break from caregiving responsibilities

Care Recipient Eligibility

Older adults and caregivers.

Caregiver Eligibility

Older adults and caregivers.

Contact Information

1-800-677-1116

Family Caregiver Alliance (FCA)

https://www.caregiver.org

FCA support and assists families and caregivers through education, advocacy and services. In addition to providing training to technical assistance to California’s Caregiver Resource Centers, FCA hosts the National Center on Caregiving (NCC). The NCC serves as a central source of information on caregiving and long-term care issues and works to advance policies and programs for caregivers in every state in the country.

CareNav is a simple, user-friendly tool designed to help families navigate the complexities of the caregiving journey. Register online or call us toll-free at 800.445.8106.

www.caregiver.org/connecting-caregivers/fca-carenav/

Care Recipient Eligibility

Anyone

Caregiver Eligibility

Anyone

Contact Information

(800) 445-8106 Available weekdays 9:00am - 5:00pm (Pacific Time)

Missouri Association of Area Agencies on Aging (AAAs)

http://www.ma4web.org/

Missouri’s Area Agencies on Aging (AAAs) serve adults who are aging and adults with disabilities in Missouri’s 114 counties and St. Louis City. AAAs provide supportive services and resources to assist aging adults to remain independent and in the homes of their choice for as long as they choose.

Care Recipient Eligibility

Anyone

Caregiver Eligibility

Anyone

Contact Information

(573) 668-8824 Senior Resource Line: 1.800.235.5503 to connect to your local AAA.

Missouri Family Caregiver Support Program

https://agingmissouri.org/Family-Caregiver-Support-Program

Services for family caregivers are provided through local Area Agencies on Aging (AAAs). AAAs can help with information, training, and support for caregivers, as well as respite for caregivers.

Connect to your local Area Agency on Aging for more information about resources and supports for caregivers.

Care Recipient Eligibility

- Adults age 18 and older caring for someone who meets care receiver eligibility Special Populations: - Adults age 55 or older who are caring for anyone (that is not their child) over 18 years old with developmental disabilities - Grandparents or other relatives age 55 or older caring for children (age 18 and under)

Caregiver Eligibility

- Adults age 18 and older caring for someone who meets care receiver eligibility Special Populations: - Adults age 55 or older who are caring for anyone (that is not their child) over 18 years old with developmental disabilities - Grandparents or other relatives age 55 or older caring for children (age 18 and under)

Contact Information

Senior Resource Line: 1-800-235-5503

Can I Get Help to Pay for Caregiving?

Consumer Directed State Plan Personal Care Program

https://health.mo.gov/seniors/hcbs/hcbsmanual/pdf/3.25.pdf

This is a Medicaid (MO HealthNet) program that allows certain family members, excluding spouses and legal guardians, to be hired and paid to provide personal care services.

Care Recipient Eligibility

Anyone (excluding spouses)

Caregiver Eligibility

Anyone (excluding spouses)

Contact Information

Missouri Department of Social Services Family Support Division: 855-373-4636

The cost of that care varies based on care setting, geographic location of care and level of care required, among other things. The Genworth’s Cost of Care Survey tool can be used by you and your family to calculate the estimated cost of long term care in your city or State.

Information about eligibility and requirements for home and community-based services by state.

Missouri’s ILW is a Medicaid (MO HealthNet) program that assists disabled persons to remain living at home. This program allows certain family members, excluding spouses and legal guardians, to be hired and paid as the personal care provider. Other services include:

  • Environmental accessibility adaptations
  • Specialized medical equipment and supplies
  • Financial management 
  • Case management

Care Recipient Eligibility

Anyone (excluding spouses)

Caregiver Eligibility

Anyone (excluding spouses)

Contact Information

MO HealthNet Division: 573-751-3425

Government Benefits and General Information

Benefits.gov

http://www.benefits.gov/

Benefits.gov (formerly GovBenefits.gov) was launched in an effort to provide citizens with easy, online access to government benefit and assistance programs. Eight years after its initial launch, GovBenefits.gov underwent a major redesign and became Benefits.gov. However, the program’s mission remains the same: reduce the expense and difficulty of interacting with the government while increasing citizen access to government benefit information.

Care Recipient Eligibility

N/A

Caregiver Eligibility

N/A

Contact Information

Benefits.gov is unable to respond to specific scenarios or provide personalized advice. A number of Other Resources and Frequently Asked Questions are available to help answer any questions you may have about government programs, benefits, and services.

For additional government information, you may call USA.gov's National Contact Center at 1-800-FED-INFO (1-800-333-4636), Monday through Friday, 8 a.m. to 8 p.m. Eastern Time, to speak to an information specialist.

Benefits.gov – Missouri

https://www.benefits.gov/categories

Benefits.gov (formerly GovBenefits.gov) was launched in an effort to provide citizens with easy, online access to government benefit and assistance programs. Eight years after its initial launch, GovBenefits.gov underwent a major redesign and became Benefits.gov. However, the program’s mission remains the same: reduce the expense and difficulty of interacting with the government while increasing citizen access to government benefit information.

Care Recipient Eligibility

N/A

Caregiver Eligibility

N/A

Contact Information

Benefits.gov is unable to respond to specific scenarios or provide personalized advice. A number of Other Resources and Frequently Asked Questions are available to help answer any questions you may have about government programs, benefits, and services.

For additional government information, you may call USA.gov's National Contact Center at 1-800-FED-INFO (1-800-333-4636), Monday through Friday, 8 a.m. to 8 p.m. Eastern Time, to speak to an information specialist.

Division of Senior and Disability Services (DSDS) – Home and Community Based Services

https://health.mo.gov/seniors/hcbs/info.php

Home and Community Based Services are available for adults ages 18 years of age and over who have Medicaid or are potentially Medicaid eligible and in need of assistance in the home. Home and Community Based Services are provided through the Department of Health and Senior Services (DHSS).

Services available in the community include:
Personal care including bathing, dressing, and grooming; Housekeeping, meal preparation, and shopping; Nursing services such as medication set-ups, blood draws, or diabetic nail care; Respite services to relieve a family member or caregiver; Meals provided by the Area Agencies on Aging; and Adult day care programs.

Caregiver Eligibility

Anyone caring for someone who meets care receiver eligibility criteria

Contact Information

1-866-835-3505

Explore every state’s Medicaid and CHIP program to learn about coverage for low-income adults, Medicaid/CHIP eligibility, enrollment and renewal processes and systems on the State Profiles map – by clicking on the map or select from drop down to see each state’s Medicaid and CHIP profile. Scroll down to the bottom page of the State profile to check eligibility requirements, enrollment process, etc.

Contact Information

Toll-Free: 877-267-2323

Information about eligibility and requirements for home and community-based services by state.

Memory Care Home Solutions

https://memorycarehs.org/

Extends and improves quality time at home for families caring for a loved one with memory loss, dementia, or Alzheimer’s disease. Their services provide in-home support, training, education, and access to resources, for caregivers of people suffering from dementia.

Care Recipient Eligibility

Anyone

Caregiver Eligibility

Anyone

Contact Information

(314) 645-6247

Missouri Aging Information Network

http://moaging.com/

Government website offers an online search tool to help consumers locate aging and disability services including:
– Long-term care facilities
– Home and community based services
– Transportation
– Legal assistance
– Respite
– Hospice

(This list is not exhaustive, please visit website for information on more services)

Care Recipient Eligibility

Anyone

Caregiver Eligibility

Anyone

Contact Information

Within Missouri, call: (800) 497-0822 Outside Missouri, call: (417) 862-0762

Missouri Association of Area Agencies on Aging (AAAs)

http://www.ma4web.org/

Missouri’s Area Agencies on Aging (AAAs) serve adults who are aging and adults with disabilities in Missouri’s 114 counties and St. Louis City. AAAs provide supportive services and resources to assist aging adults to remain independent and in the homes of their choice for as long as they choose.

Care Recipient Eligibility

Anyone

Caregiver Eligibility

Anyone

Contact Information

(573) 668-8824 Senior Resource Line: 1.800.235.5503 to connect to your local AAA.

Missouri County-Specific Veterans Service Officer Contacts (VSO)

http://www.mvc.dps.mo.gov/service/serviceofficer/

Contact Information

(573) 751-3779

Missouri Veterans Commission

http://www.mvc.dps.mo.gov/

Provides Missouri’s aged or disabled veterans with rehabilitative, residential and medical care and services. Also helps veterans and their families to present claims for veterans’ benefits to the federal government.

Care Recipient Eligibility

Family members of a veteran

Caregiver Eligibility

Family members of a veteran

Contact Information

573-751-3779

MO HealthNet -Medicaid

http://dss.mo.gov/fsd/msmed.htm

Medicaid (called MO HealthNet in Missouri) is a health insurance for people with limited income and resources. It pays for a variety of medical services, including in-home care or nursing home care, depending on eligibility.

Care Recipient Eligibility

___

Caregiver Eligibility

___

Contact Information

(573) 751-3425 TTY: (800) 735-2966

National Resource Center on Native American Aging (NRCNAA)

https://www.nrcnaa.org/

The NRCNAA serves the elderly Native American population of the U.S. The NRCAA assists in developing community-based solutions through education, training, and technical assistance to improve the quality of life and delivery of related support services to the Native aging population.

Through the Native Elder Service Locator, you can use the interactive map to locate tribal elderly services in your state.

Contact Information

(800) 896-7628

SAMHSA’s National Helpline

https://www.samhsa.gov/find-help/national-helpline

The Substance Abuse & Mental Health Services Administration (SAMHSA) National Helpline, 1-800-662-HELP (4357) (also known as the Treatment Referral Routing Service), is a confidential, free, 24-hour-a-day, 365-day-a-year, information service, in English and Spanish, for individuals and family members facing mental and/or substance use disorders. This service provides referrals to local treatment facilities, support groups, and community-based organizations.

Also visit the online treatment locator to find help near you.

Contact Information

1-800-662-4357

State Health Insurance Assistance Program -CLAIM

http://www.missouriclaim.org/

Assists individuals and families with eligibility questions and problems related to Medicare, including prescription drug coverage under Medicare Part D, managed care, long-term care planning, health insurance and other health care issues.

Care Recipient Eligibility

Anyone

Caregiver Eligibility

Anyone

Contact Information

(800) 390-3330

Can I Get Help While Living In My Home?

Adult Day Care Programs – Care Choices

http://health.mo.gov/seniors/nursinghomes/carechoices.php

Government website provides listings of licensed adult day care centers in Missouri.

Care Recipient Eligibility

Anyone

Caregiver Eligibility

Anyone

Contact Information

(573) 526-8524

Division of Senior and Disability Services (DSDS) – Home and Community Based Services

https://health.mo.gov/seniors/hcbs/info.php

Home and Community Based Services are available for adults ages 18 years of age and over who have Medicaid or are potentially Medicaid eligible and in need of assistance in the home. Home and Community Based Services are provided through the Department of Health and Senior Services (DHSS).

Services available in the community include:
Personal care including bathing, dressing, and grooming; Housekeeping, meal preparation, and shopping; Nursing services such as medication set-ups, blood draws, or diabetic nail care; Respite services to relieve a family member or caregiver; Meals provided by the Area Agencies on Aging; and Adult day care programs.

Caregiver Eligibility

Anyone caring for someone who meets care receiver eligibility criteria

Contact Information

1-866-835-3505

Missouri Adult Day Services Association – MoADSA

http://www.moadsa.org/

Association of adult day care providers. Its website provides a map of member providers of MoADSA which allows consumers to locate adult day services in their community.

Care Recipient Eligibility

Anyone

Caregiver Eligibility

Anyone

Contact Information

(573) 634-3566

Missouri Alliance for Home Care – MAHC

http://www.homecaremissouri.org/

Alliance of in-home care providers. Its website provides information about in-home care. Also offers a directory of member providers of MAHC which allows consumers to locate in-home care providers in their community.

Care Recipient Eligibility

Anyone

Caregiver Eligibility

Anyone

Contact Information

(573) 634-7772

Missouri Assistive Technology

http://www.at.mo.gov/

Statewide program assists people with disabilities obtain assistive devices and remain independent in their community. Services include:
– Assistive technology training
– Assistive technology re-use program
– Option to borrow assistive technologies for a limited period of time
– Braille writing equipment repair

Care Recipient Eligibility

___

Caregiver Eligibility

___

Contact Information

(816) 655-6700 TTY: (816) 655-6711

Government program assists low income adults who require help with activities of daily living remain in the community by helping to pay for home and community based services including:
– In-home care
– Adult day are
– Respite
Also, assists residents of nursing homes return to the community, if they are able to do so safely, by managing the transition and providing the appropriate community based services.

Care Recipient Eligibility

___

Caregiver Eligibility

___

Contact Information

866-835-3505

Missouri Council for In-Home Services

http://www.mohomecare.org/

Association of in-home care providers. Its website contains a directory which allows consumers to locate in-home care providers in their community. All providers are members of the Missouri council for In-Home Services.

Care Recipient Eligibility

Anyone

Caregiver Eligibility

Anyone

Contact Information

(573) 634-5272

Missouri County-Specific Veterans Service Officer Contacts (VSO)

http://www.mvc.dps.mo.gov/service/serviceofficer/

Contact Information

(573) 751-3779

Missouri Hospice and Palliative Care Association -MHPCA

http://www.mohospice.org/

Provides online information about hospice and palliative care. Its website includes a search tool which allows users to locate hospice and palliative care programs in their communities. Database consists of providers that are members of MHPCA.

Care Recipient Eligibility

Anyone

Caregiver Eligibility

Anyone

Contact Information

(816) 524-9505 or (573) 634-5514

Missouri Rx Plan – MoRx, Missouri Dept. of Social Services

http://www.morx.mo.gov/

Government program assists older adults and adults with disabilities pay for prescription medication. MoRx does not have an enrollment fee, deductible or monthly premium.

Care Recipient Eligibility

___

Caregiver Eligibility

___

Contact Information

(800) 375-1406

Missouri Statewide Independent Living Council – MOSILC

http://www.mosilc.org

The state of Missouri partners with a network of non-profit, non-residential, community-based centers, run and controlled by persons with disabilities that offer:
– Information and referral
– Peer counseling
– Care management
– Independent living skills training
– Individual and systems change advocacy
– Benefits counseling
– Employment readiness training
– Housing referrals
– Assistive technology services
– Legal aid

Care Recipient Eligibility

___

Caregiver Eligibility

___

Contact Information

(877) 222-8963 (Within Missouri) (573) 526-7039 (Outside Missouri)

Missouri’s Family Care Safety Registry

http://www.dhss.mo.gov/FCSR/

Registry for direct care providers. Families and employers can call the registry’s toll free number and request background information on potential individuals to hire or request licensure status information on licensed elder care providers, such as in-home care.

Care Recipient Eligibility

Anyone

Caregiver Eligibility

Anyone

Contact Information

(866) 422-6872 (573) 526-1974

Programs of All-Inclusive Care for the Elderly -PACE – Missouri

http://www.npaonline.org

A PACE program in Missouri coordinate and provide the entire continuum of care and services to their older enrollees with chronic care needs to enable them to continue living safely in the community as long as possible. Care and services include:
– Adult day health care
– Medical care
– Home health care and personal care
– All necessary prescription drugs
– Social services
– Respite care
– Hospital and nursing home care when necessary

Care Recipient Eligibility

____

Caregiver Eligibility

____

Contact Information

Alexian Brothers Community Services St. Louis (314) 771-5800 (This is the only PACE provider currently listed in MO.)

Can I Get Help with Residential Care (Assisted Living, Nursing Home, Hospice?)

Long Term Care – Missouri Department of Health and Senior Services

https://healthapps.dhss.mo.gov/showmeltc/default.aspx

Government website provides information on long term care facilities in Missouri, including nursing homes and intermediate care facilities. Offers a search tool which allows the user to search for licensed long term care facilities in Missouri by city, county or zip code.

Care Recipient Eligibility

Anyone

Caregiver Eligibility

Anyone

Contact Information

Missouri Hospice and Palliative Care Association -MHPCA

http://www.mohospice.org/

Provides online information about hospice and palliative care. Its website includes a search tool which allows users to locate hospice and palliative care programs in their communities. Database consists of providers that are members of MHPCA.

Care Recipient Eligibility

Anyone

Caregiver Eligibility

Anyone

Contact Information

(816) 524-9505 or (573) 634-5514

Missouri Rx Plan – MoRx, Missouri Dept. of Social Services

http://www.morx.mo.gov/

Government program assists older adults and adults with disabilities pay for prescription medication. MoRx does not have an enrollment fee, deductible or monthly premium.

Care Recipient Eligibility

___

Caregiver Eligibility

___

Contact Information

(800) 375-1406

Caregiver Policies and Data

Caregiving Across the States: 50 State Profiles – Missouri

https://www.caregiver.org/uploads/2023/08/Missouri-2023-1-1.pdf