Alzheimer’s Disease

Making Hard Choices: Respecting Both Voices

Findings from a groundbreaking research study exploring choice and decision-making in everyday care for persons with cognitive impairment and their family caregivers. The study makes policy and practice recommendations to advance knowledge on consumer direction and dementia care.

Publication available in hardcopy only.

Devastating

Mom was the matriarch of the family and basically raised all four of us children by herself, since my Dad worked nights. She ruled with an iron hand and domineered over every aspect of our lives.

My Dad noticed her repeating herself 8 years ago, shortly before he died. Within a couple of years, even though she was still living by herself, I noticed her memory deteriorating.

事实表 : 是痴呆症吗? 什么是痴呆症? (Is this Dementia and What Does It Mean?)

Books to Help Children

When Children Grieve, John W. James, Russell Friedman and Dr. Leslie Landon Matthews
To watch a child grieve and not know what to do is a profoundly difficult experience for parents, teachers, and caregivers. Yet, there are guidelines for helping children develop a lifelong, healthy response to loss.

In When Children Grieve, the authors offer a cutting-edge volume to free children from the false idea of "not feeling bad" and to empower them with positive, effective methods of dealing with loss.

 

Diagnosing Dementia

What does it mean when someone is said to have dementia? For some people, the word conjures up scary images of “crazy” behavior and loss of control. In fact, the word dementia describes a group of symptoms that includes short-term memory loss, confusion, the inability to problem-solve, the inability to complete multi-step activities such as preparing a meal or balancing a checkbook, and, sometimes, personality changes or unusual behavior.

Adult Day Care for Alzheimer's: The first day

The quiet stillness of morning had always been a soothing part of the routine Pat shared with her husband Tom.  It was a private time for her to have her coffee, read the newspaper, and check emails.  Tom rose a little later, made his own breakfast, and began to work at his desk.  But now, with the progression of Tom’s Alzheimer’s disease, Pat counts her personal time among the many things which have slipped away. 

Guia del cuidador para entender la conducta de los pacientes con demencia (Caregiver's Guide to Understanding Dementia Behaviors)

El cuidado de un ser querido que padezca de demencia plantea muchas dificultades a las familias y a los cuidadores. Los pacientes con demencia provocada por la enfermedad de Alzheimer u otros trastornos similares presentan un deterioro cerebral progresivo que les hace cada vez más difícil acordarse de las cosas, pensar con claridad, comunicarse con los demás o atender a su propia persona. Además, la demencia puede provocar variaciones súbitas del estado de ánimo e incluso cambiar la personalidad y la conducta del paciente.

Grandma doesn't remember me

How does having a family member with dementia affect children? The answer: It depends on the age of the child, the severity of the memory loss and the child’s relationship to the person with dementia. The better you understand how the disease affects your loved one, and how you handle your own process of loss and adapting to change, the better you can help your child.

Dementia and Pain Management: A Personal Story

My father was screaming in the nursing home. The staff had tried changing any number of his medications, but nothing stopped his agitation until the physician ordered Vicodin, a strong painkiller. I called the physician and asked him to assess what might be causing my father’s pain. The physician suggested it might be arthritis. In a calm voice, I suggested that perhaps the pain was from something more serious—would he please do an evaluation? He told me that this would be hard to do since my father has dementia and can’t tell him what hurts.

Dementia, Caregiving and Controlling Frustration

The Stresses of Caregiving

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