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Research Registry

Professional Research

FCA’s Research Registry offers a professional listing of publically and privately supported surveys, studies and clinical trials of interest to caregiving families dealing with chronic disabling health conditions, and health and service providers. Volunteers are often needed to determine whether experimental treatments or new ways of using known therapies are safe and efffective under controlled environments or to gather data that can expand knowledge and ultimately improve the lives of caregivers.  We encourage you to read our fact sheet, Evaluating Medical Research Trials and Clinical Trials, and discuss participation in any trials or research studies with your personal physician. Endorsement of studies by Family Caregiver Alliance is neither expressed nor implied.

► VIEW LISTINGS

 

Graduate Student Research

In order to help further the field of caregiver research and advocacy and encourage emerging researchers, we also provide a page for graduate students to post research questions or links to surveys for research projects on caregiving. These postings are free of charge, but should you be able to make a contribution, a donation would be greatly appreciated.

► VIEW LISTINGS

How to List a Study

Website placement fee for not-for-profit organizations is $125; for for-profit businesses is $250; graduate students listings are free, but must have university contact information, related department, and professor overseeing the study.

  • included in two successive issues each of our nationally-distributed e-newsletters, Policy Digest and Connections
  • listings are limited to approx. 250 words, excluding title and link(s)
  • listing remains on our website for three months
  • FCA can invoice you for the fee, or you may charge it to a credit card

FCA’s website and newsletter audience includes caregivers, service providers, policy-makers and those interested in long-term care issues. Please call us at (800) 445-8106 or email Lana Sheridan for instructions on submitting your posting.

Further Information About Clinical Studies/Trials

NIH National Institute on Aging Alzheimer’s research registries
www.nia.nih.gov/alzheimers/registries-and-matching-services

US National Institute of Health: Learn About Clinical Studies
https://www.nih.gov/health-information/nih-clinical-research-trials-you

FDA Women in Clinical Trials campaign
The FDA Office of Women’s Health and the National Institutes of Health Office of Research on Women’s Health (NIH ORWH) have joined forces and are working to promote greater diversity in clinical trial participation by reaching out to women who represent different ethnicities and ages, as well as those with various health conditions and disabilities. Please visit the website for more information: www.fda.gov/womeninclinicaltrials.