Fact Sheets

Grief and Loss

Introduction

Hiring In-Home Help

Introduction


Most family caregivers reach a point when they realize they need help at home. Tell-tale signs include recognizing that your loved one requires constant supervision and/or assistance with everyday activities, such as bathing and dressing. Caregivers also find that certain housekeeping routines and regular errands are accomplished with great difficulty or are left undone. It may become apparent that in order to take care of any business outside the home, more than one caregiver is required.

Advanced Illness: Holding On and Letting Go

Introduction

Our culture tells us that we should fight hard against age, illness and death: "Do not go gentle into that good night," Dylan Thomas wrote. And holding on to life, to our loved ones, is indeed a basic human instinct. However, as an illness advances, "raging against the dying of the light" often begins to cause undue suffering, and "letting go" may instead feel like the next stage.

How to Form a Support Group for Families of Brain-Impaired Adults

Support or "self-help" groups are formed by people who share common concerns. The groups may be participant-initiated or sponsored by a health care institution, social services agency or nonprofit organization.

A degenerative or terminal illness, or an accident involving a family member, is a traumatic experience for spouse, parents, children and other relatives. Support groups allow those facing the difficult task of daily caregiving to benefit from interaction and support from other people in similar situations.

Genetic Testing

Introduction

In recent years, much energy has been put into genetic research both through the individual efforts of interested scientists and through the collaboration of international teams in the Human Genome Project. Through this work, we have learned a great deal about how genes function and how they can cause certain problems. We now know how to look for mutations (changes in the gene) that can lead to specific disorders. Genetic testing is possible for some conditions because we can recognize the difference between a normal gene and a disease gene.

Evaluating Medical Research Findings and Clinical Trials

Introduction

Hardly a day goes by without a story on television, in the newspaper, or on the Internet about new medical research findings. You might hear about a new drug to treat Alzheimer’s, a promising “cure” for cancer, or a breakthrough discovery in Parkinson’s disease. Or you might see articles about particular foods or dietary supplements that are said to promote health or prevent or slow the course of illness. Should you try to get these drugs for a family member who is sick? Should the person change his diet? Take more vitamins?

Helping Families Make Everyday Care Choices

Introduction

The best everyday care choices for the person diagnosed with a dementing illness, and for loved ones giving care, depend on an understanding of values and care preferences. Examples of everyday care choices include when to stop driving, how to manage money, whether to purchase or use support services, when to accept care from family members and, at a more personal level, when to bathe and what activities to do.

Depression and Caregiving

Introduction

Could the sadness, loneliness or anger you feel today be a warning sign of depression? It’s possible. It is not unusual for caregivers to develop mild or more serious depression as a result of the constant demands they face in providing care.

Advanced Illness: CPR & DNR

Introduction

Selected Caregiver Statistics

Fact Sheet: Selected Caregiver Statistics

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