National Resources for Family Caregivers

Family caregivers can use this handy listing of national organizations to help locate information and support on topics and issues important to them.

For state-specific information, please see the Family Caregiver Services by State map and guide.

Caregiver/Older Adults

Family Caregiver Alliance – https:// www.caregiver.org

AARP Resources for Caregivers – https://www.aarp.org/caregiving/

Aging Life Care Association (formerly the National Association of Geriatric Care Managers) – https://www.aginglifecare.org/

American Seniors Housing Association (ASHA) – https://www.whereyoulivematters.org/

ARCH National Respite Network – https://archrespite.org/respitelocator

Benefits Checkup – https://benefitscheckup.org/

Caregiver Action Network – https://www.caregiveraction.org/

CCAL-Advancing Person-Centered Living – https://ccal.org/about-ccal/

Diverse Elders Coalition – https://diverseelders.org/

Eldercare Locator – Area Agencies on Aging (AAAs) – https://eldercare.acl.gov/

LeadingAge – https://leadingage.org/

Leeza’s Place – http://www.leezasplace.org/

Lotsa Helping Hands – https://lotsahelpinghands.com/

Meals on Wheels Association of America (MOWAA) – https://www.mealsonwheelsamerica.org/find-meals

National Adult Day Services Association (NADSA) – https://www.nadsa.org/for-caregivers/consumers/

National Alliance for Caregiving (NAC) – https://www.caregiving.org/

National Center on Elder Abuse – https://ncea.acl.gov/

National Center on Senior Transportation – https://www.nadtc.org/aging-and-disability-transportation-overview/

National Long-Term Care Ombudsman Resource Center – https://ltcombudsman.org/

Need Help Paying Bills – https://www.needhelppayingbills.com/

NeedyMeds – http://www.needymeds.org

Paying for Senior Care – https://www.payingforseniorcare.com/

Powerful Tools for Caregivers – https://www.powerfultoolsforcaregivers.org/

Quality Improvement Organization (QIO) (help for people with Medicare who has quality of care concerns and complaints)– https://qioprogram.org/locate-your-qio

Rosalynn Carter Institute for Caregiving (RCI) – http://www.rosalynncarter.org/home/

Shepherd’s Centers of America – https://www.shepherdcenters.org/

The National Consumer Voice for Quality Long-Term Care (formerly NCCNHR) – https://theconsumervoice.org/

Well Spouse Association – https://wellspouse.org/

Faith Based Organizations

Catholic Charities – https://www.catholiccharitiesusa.org/

Lutheran Services in America – https://lutheranservices.org/older-adults/

National Volunteer Caregiving Network (Faith In Action) – https://nvcnetwork.org/wp/

Network of Jewish Human Service Agencies – https://www.networkjhsa.org/agency-locator/

Government Resources

ClinicalTrials.gov – https://clinicaltrials.gov/

Disability.gov – https://www.dol.gov/agencies/odep/topics

Healthfinder.gov – https://health.gov/myhealthfinder

LongTermCare.gov – https://acl.gov/ltc

Medicare.gov – Nursing Home Compare – https://www.medicare.gov/care-compare/?providerType=NursingHome&redirect=true

MedlinePlus – Go Local – https://medlineplus.gov/

Social Security Disability Insurance (SSDI) – https://www.ssa.gov/benefits/disability/

Supplemental Security Income (SSI) – https://www.ssa.gov/benefits/ssi/

Medicare Rights Center – https://www.medicarerights.org/

US Dept of Labor – Family and Medical Leave – https://www.dol.gov/agencies/whd/fmla

Health Organizations

ALS Association – https://www.als.org/

ALS Network – https://alsnetwork.org (serves California and Hawaii)

Alzheimer’s Association – https://www.alz.org/

Alzheimer’s Disease Education and Referral (ADEAR) Center – Alzheimer’s Disease Clinical Trials Database – http://www.nia.nih.gov/Alzheimers

Alzheimer’s Foundation of America – https://alzfdn.org/

Alzheimer Research Forum – http://www.alzforum.org

American Brain Tumor Association – https://www.abta.org/

American Cancer Society – https://www.cancer.org/

American Chronic Pain Association – https://www.acpanow.com/

American Diabetes Association – https://www.diabetes.org/

American Heart Association – https://www.heart.org/

American Kidney Fund – https://www.kidneyfund.org/

American Pain Foundation – https://uspainfoundation.org/

American Parkinson’s Disease Association (APDA) – https://www.apdaparkinson.org/

American Stroke Association – https://www.stroke.org/

Arthritis Foundation – https://www.arthritis.org/

Association for Frontotemporal Dementias (AFTD) – https://www.theaftd.org/

Brain Injury Association of America – https://www.biausa.org/

BIAA Caregiver Information Center – https://www.biausa.org/brain-injury/community/caregiver-information-center

Brain Talk Communities – https://www.braintalkcommunities.org/

BrainLine – https://www.brainline.org/

Cancer Support Community – https://www.cancersupportcommunity.org/

Defeat Diabetes Foundation (Support Groups) – https://defeatdiabetes.org/get-healthy/diabetes-support-groups/

Healing Exchange BRAIN TRUST (Support Groups) – https://braintrust.org/

Huntington’s Disease Society of America – https://hdsa.org/

Hydrocephalus Association – https://www.hydroassoc.org/

Leukemia and Lymphoma Society – https://www.lls.org/

Lewy Body Dementia Association, Inc. (LBDA) – https://www.lbda.org/

MedHelp.org – https://www.medhelp.org/

Multiple Sclerosis Foundation – https://msfocus.org/

National Brain Tumor Foundation – https://www.braintumorfoundation.org/

National Brain Tumor Society – https://braintumor.org/

National Diabetes Information Clearinghouse – https://www.niddk.nih.gov/health-information/diabetes

National Kidney Foundation – https://www.kidney.org/

National Multiple Sclerosis Society – https://www.nationalmssociety.org/

Needy Meds – https://www.needymeds.org/

Parkinson’s Disease Foundation – https://www.parkinson.org/

Patient Advocate Foundation – https://www.patientadvocate.org/

Legal Assistance

American Bar Association (ABA) – Commission on Law and Aging – https://www.americanbar.org/groups/law_aging/

LawHelp.org – https://www.lawhelp.org/

Legal Services Corporation (LSC) ( Legal aid) – https://www.lsc.gov/

National Academy of Elder Law Attorneys (NAELA) – https://www.naela.org/findlawyer

National Center on Law and Elder Rights – https://ncler.acl.gov/

WorkLife Law (WLL) – https://worklifelaw.org/get-help/what-is-frd/

Palliative/Hospice

Aging with Dignity (End of Life Planning) – https://agingwithdignity.org/

Hospice Foundation of America – https://hospicefoundation.org/

National Association for Home Care and Hospice (NAHC) – https://mynahc.nahc.org/directories/agency-locator?reload=timezone

Rare Diseases/Disorders

National Organization for Rare Disorders (NORD) – https://rarediseases.org/

Genetic and Rare Diseases Information Center – https://rarediseases.info.nih.gov/

Veterans Resources

National Association of County Veteran Service Officers (NACVSO) – https://www.nacvso.org/

U.S. Department of Veterans Affairs (VA) and Caregiver Hotline for Post – 9/11 – https://www.va.gov/family-member-benefits/comprehensive-assistance-for-family-caregivers/

VA – Directory of Veterans Service Organizations – https://www.va.gov/vso/