Our culture tells us that we should fight hard against age, illness and death: "Do not go gentle into that good night," Dylan Thomas wrote. And holding on to life, to our loved ones, is indeed a basic human instinct. However, as an illness advances, "raging against the dying of the light" often begins to cause undue suffering, and "letting go" may instead feel like the next stage.
Two and half years ago my then-boyfriend was diagnosed with ALS (Lou Gehrigs disease). We were determined to deal with this horrible disease . . . and keep him home. I had no idea how hard this job would be!