National

National Diabetes Information Clearinghouse

An information service of the National Institute of Diabetes and Digestive and Kidney Diseases, the clearinghouse responds to inquiries about diabetes, provides referrals to health professionals, and offers publications about diabetes.

National Brain Tumor Society

Provides information about brain tumors and caregiver support services to patients and families. Offers one-to-one support over the phone or email regarding decisions for treatment. Also offers a list of support groups located throughout the United States and Canada.

National Brain Tumor Foundation

Provides information and support for brain tumor patients, family members, and healthcare professionals regarding treatment options and community resources. It also offers a range of opportunities to connect with other patients or caregivers through the Internet, by phone or in-person.

Multiple Sclerosis Foundation

Offers a national toll-free helpline, online forum, and a support group directory.

Lewy Body Dementia Association, Inc. (LBDA)

Provides scientific, clinical, and caregiver information on Lewy Body Dementia and offers phone and email helplines for caregivers.

Leukemia and Lymphoma Society

Operates a call center that provides information on local resources as well as support and guidance. Provides financial assistance to qualified blood cancer patients, information about leukemia and lymphoma, and other information for patients and their families.

Hydrocephalus Association

Offers services and resources to patients, their families and professionals including personal support and educational materials about hydrocephalus.

Huntington's Disease Support Information

An online service that offers state-specific information and resources on Huntington's disease for individuals and caregivers.

Huntington's Disease Society of America

Provides support, information and educational services to Huntington's disease families through a network of volunteer-based chapters and affiliates.

Hungtinton's Disease Advocacy Center

Provides information on Huntington's disease and resources for caregivers, including a list of online support groups.

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